Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
Join our wonderful Society team for our one hour Let’s Chat: Kids virtual support group for those aged 6-12. This group takes place once per month and is a wonderful place for junior zebras to meet one another and to make friends with others who truly understand. Notes: attendees who wish to participate in View page
After 30 years of the unknown, I finally got an answer. One night my husband was watching Ninja Warrior and heard a story of a woman with this rare condition. This was after years of going to doctors and him coming home poking me to see if certain things hurt when he finally got the View page
I had spent most of my life so far being very active. I lived to help others. I cared for the elderly, children and disabled. I taught gymnastics for 20 years. Now the tables are turned. It’s me who needs the care and I struggle with this new role. It feels foreign to me, this View page
My daughter’s previous rehabilitation doctor told us that the same program applies to hEDS as to fibromyalgia. “The pain is between the ears. We’re going to fool you and reset your brain. Your brain sends the wrong signals and we will treat that.” Because I did not agree with the rehabilitation doctor, I was almost View page
