I had my first shoulder dislocation at age 12 and my first knee dislocation; I now have about ten a day! Growing up I was naturally flexible and didn’t have to stretch like everyone else at gymnastics, dance, and cheerleading but little did I know this was not a good thing. From a View page
Hi, I am Jaqueline, I‘m 18 years old and from Germany. I was diagnosed with Ehlers-Danlos syndrome when I was 17 years old. We still don’t know what subtype I have, as further genetic diagnostics are pending. Hypermobility has had its consequences: my knee joints have been dislocating since I was six years old, which View page
May is EDS awareness month and I’ve decided to take part in the #myEDSchallenge by writing about my own personal journey. I am 47 years old and became symptomatic in the 1970s with a collapsed bowel, resulting in various visits to children’s wards at both St Thomas’ Hospital in London and my own local hospital. View page
