Tag Archive: MCAS

young teenage girl sitting in her wheelchair smiling next to a Christmas tree on a hospital inpatient ward.⁠

I’m glad to have answers

I had my first shoulder dislocation at age 12 and my first knee dislocation; I now have about ten a day! Growing up I was naturally flexible and didn’t have to stretch like everyone else at gymnastics, dance, and cheerleading but little did I know this was not a good thing. ⁠ ⁠ From a
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Jaqueleine and her horse

I want to become a doctor to help children with genetic conditions

Hi, I am Jaqueline, I‘m 18 years old and from Germany. I was diagnosed with Ehlers-Danlos syndrome when I was 17 years old. We still don’t know what subtype I have, as further genetic diagnostics are pending. Hypermobility has had its consequences: my knee joints have been dislocating since I was six years old, which
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Nicki's story

It took 40 years to receive my EDS diagnosis

May is EDS awareness month and I’ve decided to take part in the #myEDSchallenge by writing about my own personal journey.  I am 47 years old and became symptomatic in the 1970s with a collapsed bowel, resulting in various visits to children’s wards at both St Thomas’ Hospital in London and my own local hospital.
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