When Halle was born and they placed her on my chest, I immediately knew something was different. As the labor and delivery nurse was wiping her down I remember she said to me, “What’s wrong sweetie? You look worried.” I noticed Halle felt floppier than my first two kids. She also had very large gums,
By Rachel O. My journey to diagnosis was not an easy one. As a child, I was always in pain. Walking hurt. Running hurt. Sitting hurt. Standing hurt. Pretty much anything you can think of hurt. I never really knew why, I just knew that no matter what I did the pain didn’t go away.