Tag Archive: Men

Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
View page


Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Men's Health Week 2021

Men’s Health Month 2021

June is Men’s Health Month. Men can and do endure the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and associated symptoms and conditions. Even though EDS and HSD are underdiagnosed, they can be just as severe and debilitating, no matter your gender identity. All individuals living with EDS or HSD deserve visibility, care, and support. Learning to
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My awareness mission

My name is Alexander VanHouten. I have Ehlers-Danlos syndrome, and though living with pain and constant threat of injury every day is no walk in the park, I am thankful for the trajectory my life has taken because of this disease. When I was a child I was, like most young boys, a hyperactive, rambunctious
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cVEDS | People need to hear my husband’s story

My husband has Ehlers-Danlos syndrome. He was the typical case that wasn’t caught until he was older. When he was about 20, he swatted at a wasp and his arm dislocated. The surgeon that did the surgery knew there was something more going on because of the severity of the tips and tears. It was
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vEDS, you picked the wrong person

November 8, 2017, was the beginning of my journey with vascular Ehlers-Danlos syndrome. I label my event as an attack, because it was just that, but I survived the war this disease has started with me. My attack caused both of the arteries in my kidneys to dissect, along with a couple of aneuryms throughout
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The long road to diagnosing HSD

It has taken a long time for my family to be diagnosed with hypermobility spectrum disorder (HSD). We’ve been told different things by different geneticists, and we have symptoms that aren’t attributed to HSD. One of my brothers, my mother, and myself have also all been diagnosed with Hashimoto’s disease. It proves extremely difficult for
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If only people understood

I’m Spencer, I’m 16 years old, and I have hEDS. I wanted to share my story, because I know that there isn’t a lot of visibility for the men out there with EDS. My symptoms started when I was 6 years old. It started out as pain and instability in my ankles and knees, which was
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