My name is Luca (He/Him) and I’m 36 years old. I received a diagnosis of classical Ehlers-Danlos syndrome (cEDS) at age 24. For 14 years I have been
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My name is Carin. I grew up here in Massachusetts, I was an avid backpacker and through-hiker, ecologist, explorer, traveler, dancer, and a hard worker. Now, I’m lucky if I
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Denial: A tiger in a zebra’s body. “Have you in the last three months installed a shower rail?” I said, “No, but does a 6ft male count?” The nurse chuckled
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CW: Contains discussion of self-harm Growing up I felt unique and different; I used to always freak out my friends by hyperextending my elbows and thumbs. I had no idea
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From a young age, I had various injuries and health concerns. We knew I was hypermobile but this was never linked to any other concerns. I began rock climbing at
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My name is Tess. I’m 27 years old and I love life, I really do. Everything about it – people, animals, my pets, our beautiful surroundings, even my mind, and
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My story with classical-like Ehlers-Danlos syndrome (clEDS) started from birth. I have always struggled with bowel problems, and I could not walk far or even sit down without my knee
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For my whole life I struggled with building strength, keeping up with peers, and not understanding why movements look so different when I do them compared to others. As an
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My name is Alexander VanHouten. I have Ehlers-Danlos syndrome, and though living with pain and constant threat of injury every day is no walk in the park, I am thankful
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