Tag Archive: myopathic
Cecily is a vibrant and social, but tender-hearted 12-year-old ballet dancer who, despite her multiple diagnoses, not only finds true joy in the day to day but inspires it in all of us. After years of daily headaches (from the time she could express herself in words), “growing pains”, progressive bilateral leg deformities, and finally View page
By Rachel O. My journey to diagnosis was not an easy one. As a child, I was always in pain. Walking hurt. Running hurt. Sitting hurt. Standing hurt. Pretty much anything you can think of hurt. I never really knew why, I just knew that no matter what I did the pain didn’t go away. View page
