Tag Archive: pediatrics

AHEAD - Action for Infants, Children and Young People with HSD and EDS Accurate Diagnosis.

Pediatric Concerns in EDS and HSD: Exploring the impact of misdiagnosis

On January 10, 2021, The Ehlers-Danlos Society hosted an awareness event exploring misdiagnosis of hypermobility spectrum disorders [HSD] and Ehlers-Danlos syndromes [EDS] and child abuse. The Ehlers-Danlos Society has been hearing from a growing number of families and individuals sharing their experiences of being diagnosed with a factitious disorder, either imposing ill health on self
View page


Child Protection in EDS and HSD Roundtable Discussion

The Ehlers-Danlos Society has been hearing from a growing number of families and individuals sharing their experiences of being diagnosed with a factitious disorder, either imposing ill health on self, or, more typically a parent on a child. People have spoken publicly at meetings and shared the most harrowing and heart-breaking stories that have had
View page