Tag Archive: scarring

Managing my insecurities

My name is Rachel and I have classical EDS (cEDS). I’ve never been open to anyone about my insecurities about having EDS. I’ve told others that I have it, and explained what it is in a very objective way, but I never dwelt deeper than that. Searching ‘EDS’ in Instagram was shocking to find so […]
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Learning how to adapt to life with cEDS

By Liz H. My daughter, Frances, was diagnosed with cEDS when she was almost 2 years old. We feel lucky that we were able to obtain a diagnosis so young, knowing that many EDS patients spend much of their lives trying to figure it out. It’s possible that we also would have been in the […]
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O que eu tenho a dizer a todas as Zebras é que sejam fortes e corajosas

Olá. Meu nome é Betuel Tiago. Tenho 24 anos e atualmente estou no estado de Santa Catarina mas sou do estado do Paraná no Brasil. Tenho Ehlers-Danlos síndrome subtipo Clássica. Possuo muitas cicatrizes em meu corpo, a maior parte deles aconteceram na infância e ficam marcas para vida toda. As vezes saem feridas em meus […]
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