Tag Archive: skin

Growing up with cEDS

I am 21-years-old, and I was diagnosed with Ehlers-Danlos syndrome (EDS) when I was six months old. My father has EDS as well, and he noticed when I fell off
View page


genevieve is taking a selfie, while holding an IV pole

My lightbulb moment

The first sign that something was wrong was my ankles. Anyone walking behind me could see that my feet wobbled as I walked. As a kid, I didn’t realize this
View page


Managing my insecurities

My name is Rachel and I have classical EDS (cEDS). I’ve never been open to anyone about my insecurities about having EDS. I’ve told others that I have it, and
View page