Tag Archive: Support group
Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Parents virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with other parents living with EDS or HSD, and parents of children living View page
Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Parents virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with other parents living with EDS or HSD, and parents of children living View page
Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Parents virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with other parents living with EDS or HSD, and parents of children living View page
Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Parents virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with other parents living with EDS or HSD, and parents of children living View page
I have been dealing with chronic pain for a long time. I had a long journey looking for answers. I was finally diagnosed at age 49, in April 2019, when a genetic test confirmed classical Ehlers-Danlos syndrome (cEDS). When I was little I remember the pain in my legs and feet after any activity, and View page
It would take me hours to tell my story fully. But here is a start. One day just before Christmas I got up off of my bed and felt excruciating pain in my knee, I went to the emergency room and because I could still move my knee they sent me home. A few months View page
We know members of our community are feeling overwhelmed with the current situation with COVID-19 [Coronavirus]. It may seem a daunting time, and it is important to look after our emotional and mental health. Alongside our regular virtual support groups, Helpline, and scheduled webinars that continue as normal, the Ehlers-Danlos Society has set up additional View page
