Tag Archive: Support group

a selfie of mirna smiling at the camera

I was diagnosed with cEDS after a lifetime of symptoms

I have been dealing with chronic pain for a long time. I had a long journey looking for answers. I was finally diagnosed at age 49, in April 2019, when a genetic test confirmed classical Ehlers-Danlos syndrome (cEDS).  When I was little I remember the pain in my legs and feet after any activity, and
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Stephen's story with Ehlers-Danlos syndrome

I struggle to find a job that will accept me

It would take me hours to tell my story fully. But here is a start.  One day just before Christmas I got up off of my bed and felt excruciating pain in my knee, I went to the emergency room and because I could still move my knee they sent me home. A few months
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Let’s Chat – Virtual Support Groups

We know members of our community are feeling overwhelmed with the current situation with COVID-19 [Coronavirus]. It may seem a daunting time, and it is important to look after our emotional and mental health.  Alongside our regular virtual support groups, Helpline, and scheduled webinars that continue as normal, the Ehlers-Danlos Society has set up additional
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