Tag Archive: support

Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Let’s Chat: Men Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: Men virtual support group. These groups take place quarterly and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in
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Molly out riding her horse

Working together for Molly

My wife, Molly was diagnosed over twenty years ago with hypermobile EDS (hEDS). For years, we have dealt with many challenges EDS has brought. For most of those years, we have been able to live a pretty normal life, albeit with limitations and strong medications. We have owned and rode horses for most of our
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My kEDS-FKBP14 diagnosis changed my life

After 24 years of searching, countless genetic tests and doctor appointments, I was given my diagnosis of  kyphoscoliotic Ehlers-Danlos syndrome-FKBP14 variant (kEDS-FKBP14). That day, I not only got a name for the condition that plays such an immense role in my life, but I got a tool: I got a name, a word, to help
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