When I was little, my favorite book was Heidi by Johanna Spyri. I have read the book so many times that I think I’ve got it memorized. The character I
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Success consists of getting up just one more time than you fall. (Oliver Goldsmith) For me, the question is not whether you get up after a fall, but how often
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Hello, my name is Alyssa Kelly, and I was formally diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS) by a geneticist when I was 21. My mother knew something was wrong from
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I have always been hypermobile, had elastic skin, joint pain, and lots of other common symptoms of Ehlers-Danlos syndrome. However, I was not diagnosed until I was almost 16 years
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I have been dealing with chronic pain for a long time. I had a long journey looking for answers. I was finally diagnosed at age 49, in April 2019, when
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May is EDS awareness month and I’ve decided to take part in the #myEDSchallenge by writing about my own personal journey. I am 47 years old and became symptomatic in
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Hello all, my name is Faith. I am 27 years old, my diagnosis journey began in 2017. Feb 13, 2017, to be exact. That morning I was awakened from my
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My name is Tess. I’m 27 years old and I love life, I really do. Everything about it – people, animals, my pets, our beautiful surroundings, even my mind, and
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Life has this funny way of telling you things you can and can’t do, over and over again. As a child, we knew something was “off” with the way I
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