Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand. Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS. Notes: attendees who wish to participate in the discussion must join
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Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand. Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS. Notes: attendees who wish to participate in the discussion must join
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Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand. Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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CW// Discussion of surgery and medical trauma When I was a child, I recall my mother suffering from daily migraines, and neck pain. The day before my 13th birthday, my mom passed away. At the time, it was said to me that she died from “an aneurysm in her heart”. Now, I know that she
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Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS. Notes: attendees who wish to participate in the discussion must join
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Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand. Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS. Notes: attendees who wish to participate in the discussion must join
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The specialty pharmaceutical company, AytuBio Pharma, announced this week that it anticipates the PREVEnt trial will begin in late 2022 or early 2023. This study will be investigating the ability of enzastaurin to reduce the severe complications of vEDS. There are currently no FDA-approved therapies for vEDS. Aytu BioPharma CEO Josh Disbrow writes the following: “Aytu BioPharma remains committed
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