Tag Archive: vEDS

Let’s Chat: vEDS Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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Let’s Chat: vEDS Parents Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS.   Notes: attendees who wish to participate in the discussion must join
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Let’s Chat: vEDS Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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Let’s Chat: vEDS Parents Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS.   Notes: attendees who wish to participate in the discussion must join
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Let’s Chat: vEDS Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
View page


Let’s Chat: vEDS Parents Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS.   Notes: attendees who wish to participate in the discussion must join
View page


Let’s Chat: vEDS Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
View page


Let’s Chat: vEDS Parents Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS Parents virtual support group. This group takes place once per month and is a wonderful place to connect with other parents living with vEDS or parents of children living with vEDS.   Notes: attendees who wish to participate in the discussion must join
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Aytu BioPharma Announces PREVEnt Trial Start Planned for Late 2022 or Early 2023

The specialty pharmaceutical company,  AytuBio Pharma, announced this week that it anticipates the PREVEnt trial will begin in late 2022 or early 2023. This study will be investigating the ability of enzastaurin to reduce the severe complications of vEDS. There are currently no FDA-approved therapies for vEDS.   Aytu BioPharma CEO Josh Disbrow writes the following:   “Aytu BioPharma remains committed
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Let’s Chat: vEDS Virtual Support Group

Join our wonderful Society team for our one hour Let’s Chat: vEDS virtual support group. This group takes place once per month and is a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who wish to participate in the discussion must join the meeting through the Zoom platform.
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