Tag Archive: vEDS

VASCULAR EDS: MAKING EACH DAY COUNT

For however long God gives me on this earth; I would like to make each day count. If I educate just one person a day or even a week, when my time here is over, my family will be able to say she made a difference in at least one person’s life.
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STANDING MY GROUND

So I fight on like the EDS Warrior that I am. And I will continue to fight and push on until I’m called home! 
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To Shine Forth, Head Held High

by Matt Smith Since being diagnosed back in 2013 with vascular Ehlers-Danlos syndrome, there has been a constant internal conflict of whether or not being diagnosed with a life-threatening, rare, genetic, incurable condition, is a good thing or a bad thing. The fear and anxiety caused by the knowledge that you have this condition that […]
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