Tag Archive: volunteering

Michelle has long brown hair, wears a black shirt, and smiles into the camera whilst holding a book.

Why I volunteer

Like far too many in our community, I had been on a very long and very lonely journey to my diagnosis. I was 24 when I graduated from Medical School and felt like I was on the cusp of life. By the age of 26, I was almost bedbound. With each new ailment that was
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Volunteers of The Ehlers-Danlos Society represent the community at the CIPM Policy Congress

The Ehlers-Danlos Society remains committed to reducing the pain of our community. Towards this goal,  volunteers of The Ehlers-Danlos Society have been participating in the Comprehensive Integrative Pain Management Policy Congress. This engagement with other organizations is particularly important to ensure that the unique pain management concerns of people with the Ehlers-Danlos syndromes, and hypermobility
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