
We’re thankful for Larissa in Minnesota, USA, who has completed an incredible 60 hikes fundraising for The Ehlers-Danlos Society this week, raising over $1,200 to support our global mission!
Across seasons, day and night, Larissa has hiked for awareness, sharing her walks and educating on the Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD) through social media – we’ve loved watching her journey unfold and thank everyone who has cheered her along from the community.
“After many years of seemingly random illness and ailments, I was finally diagnosed with EDS in 2021. From the day I learned of EDS, it was obvious that there was not a lot of information out there. And there aren’t enough doctors knowledgeable on the matter, much less able to diagnose.
“My goal was to fundraise for The Ehlers-Danlos Society: the leading organization pushing for EDS care, access, research, and education.”