Published: 23/11/2023 Tags: The Ehlers-Danlos Society News

Take a hike EDS — Larissa is helping make our mission possible! ⁠

We’re thankful for Larissa in Minnesota, USA, who has completed an incredible 60 hikes fundraising for The Ehlers-Danlos Society this week, raising over $1,200 to support our global mission! ⁠

Across seasons, day and night, Larissa has hiked for awareness, sharing her walks and educating on the Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD) through social media – we’ve loved watching her journey unfold and thank everyone who has cheered her along from the community.⁠

“After many years of seemingly random illness and ailments, I was finally diagnosed with EDS in 2021. From the day I learned of EDS, it was obvious that there was not a lot of information out there. And there aren’t enough doctors knowledgeable on the matter, much less able to diagnose. ⁠

“My goal was to fundraise for The Ehlers-Danlos Society: the leading organization pushing for EDS care, access, research, and education.”

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

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