Hey there! Are you between 15-18 years old and ready to make a real difference in the world of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)? Join the Teen Council, where your voice matters! 

→What’s the Teen Council All About?

Think of the Teen Council as the place to talk about your ideas, spark change, and meet other amazing teens who are just as passionate as you are. Whether it’s through leading projects, voicing your thoughts, or planning cool community events, here’s where you can shine and grow. We’ll create a space where every Teen Council member feels valued, heard, and supported.

Through monthly meetings, we’ll cover some impactful topics, including:

  • Advocacy and Education
  • Event Planning and Preparation
  • Government Lobbying
  • Public Speaking
  • Fundraising
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  • Make Your Mark

Our mission? To empower YOU. We’re here to amplify your ideas and turn them into action. From advocating on important issues in EDS and HSD to organizing events that bring us all together, you’ll help steer the ship. This is your chance to speak up about what matters to you. Plus, you’ll learn a ton along the way about teamwork, problem-solving, and making an impact. 

  • Here's the Details on Meetings

When? The second Sunday of each month, from July 2024 to May 2025, at 1pm Eastern Time (US and Canada) 

Where? Online via Zoom. We’ll send you all the invites once you’re in! 

→Applications now closed

Teen Council applications for 2024-2025 are now closed. Keep an eye out on social media and our website for updates when applications for the 2025-2026 Teen Council will be open.

Are you a member? Access the Teen Council Hub here.


Got something on your mind? Drop a line to Emily Shotbolt. She’s here to help! 

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