Darcey Kelly is only expected to live up to 40 years, but that hasn’t stopped the Hertfordshire, England teen from attending university and pursuing a full personal life.
Kelly has the most severe form of Vascular Ehlers-Danlos syndrome (VEDS), a disorder that causes overly flexible joints, weak and stretchy skin as well as a weakened arteries and organs, according to the Mayo Clinic.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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