Posted October 12, 2022

“I love the Whova app. This is by far the best virtual event app that I have encountered. It makes me truly feel like a participant from afar. These Ehlers-Danlos Society events have greatly alleviated the feeling of being alone in this fight. It took 3 years to get our daughter diagnosed (I know, that is actually fairly short for EDS). Once diagnosed – we still had a long wait for any treatment.  Attending these conferences has helped to bridge the gap and provide hope.”

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