The Long Journey to Hope

Posted December 7, 2018

For many, the winter holidays are a special time, a journey of joy, reflection, reminiscence, and hope.

However, as a global community of patients, families, allies, and professionals, we know the challenges of the Ehlers-Danlos syndromes and hypermobility spectrum disorders firsthand.

Yes, for those of us living with EDS/HSD, the winter holidays can be particularly demanding. Yet, each day, we learn more. Each day, we overcome more.

We strive zealously to improve the lives of fellow zebras, wherever they may be.

Our journeys may be challenging. But, gradually, we gain strength from each other. Slowly, our hope grows with the knowledge that each day, we know more, we do more—and, with each advance in research, each advance in understanding, our hope grows stronger.

The journey may be arduous, but our resolve remains strong. Indeed, our strength begins with hope—and our hope begins with you.

Thank you for being part of the EDS/HSD community, The Ehlers-Danlos Society, and our long journey to hope.

May your new year be filled with love and light, healing and joy, and most of all strength and hope in the face of each challenge we endure.


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