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You don’t often hear about a vibrant 16-year-old having to deal with permanent life struggles.
Erin Jane Condrin from Queensland, Australia has Ehlers Danlos Syndrome, which is a connective tissue disorder. Multiple systems of Erin’s body are impacted daily. “My joints are hugely impacted; I dislocate up to 20 times during the day, causing pain and fatigue,” said Erin.
“Due to the damage and pain caused from the dislocations I am a full-time wheelchair user – I use both a power and manual chair depending on how I am feeling that day. I struggle with everyday activities such as tying shoelaces, writing and using cutlery.”
Categorized in: Ehlers-Danlos in the News