Third-Party Fundraiser Guidelines and Agreement

Thank you for your interest in hosting a third party fundraising event to benefit The Ehlers-Danlos Society. These types of events help us raise important funds each year, and we are grateful for your support.

A third-party fundraising event is any activity by a non-affiliated group or individual, where The Ehlers-Danlos Society has no fiduciary responsibility and little to no staff involvement. These events are hosted by an outside party who wishes to hold a promotion, event, or sale to benefit The Ehlers-Danlos Society.

Due to the high volume of third-party requests, unfortunately we cannot personally participate in each event, but will provide informational materials about The Ehlers-Danlos Society assist in promotional efforts (when applicable).

In order to preserve the integrity of the The Ehlers-Danlos Society’s name and establish expectations for every involved party, The Ehlers-Danlos Society must approve all events in advance. Please fill out the form below and the attached agreement prior to promoting your third-party event. Together, we will discuss your plan and provide guidance for success!

Due to federal regulations and our policy, The Ehlers-Danlos Society is unable to:
  • Provide our tax exemption number
  • Offer funding or reimbursement of expenses
  • The Ehlers-Danlos Society mailing lists of donors or vendors
  • Provide branded stationary
  • Guarantee attendance of The Ehlers-Danlos Society staff or volunteers at the event

Please contact us with questions, at 410-670-7577 or suggestions on types of third party events. Thank you for your interest and support! Third-Party Event Policies
  • As the originator of a third-party event or project, you are considered the event organizer. The organization, promotion and execution of the event are your responsibility.
  • All potential event organizers must complete the Special Event or Project Proposal form and return it to The Ehlers-Danlos Society prior to conducting or publicizing the event.
  • If your third-party fundraising event is approved, you will receive a letter of authorization from The Ehlers-Danlos Society to validate the authenticity of the event and its organizers. Approval status will remain in effect for 12 months from the date of the letter authorization so long as the activity is consistent with what has been approved. After 12 months have expired, organizers must reapply using this same process.
  • All additional activities pursued by your group for the benefit of The Ehlers-Danlos Society need to be reported and approved.
  • You will receive written notice if your third-party fundraising event is not approved.
  • Before distribution to the public, The Ehlers-Danlos Society must approve all event-related publicity in which The Ehlers-Danlos Society’s name and/or logo are used. The names and logo must be used in accordance with The Ehlers-Danlos Society’s graphic guidelines and standards.
  • The event organizer will pay any license fees and will cover all other incurred expenses. Estimated expenses and revenue must be established by the event organizers and submitted for review by The Ehlers-Danlos Society before the event. Our goal is that the expenses are not to exceed 45% of the total amount raised. If The Ehlers-Danlos Society will not receive all event proceeds, then it must be stated clearly in all publicity and collateral materials that a portion of the proceeds will benefit The Ehlers-Danlos Society.
  • In order to avoid conflicting fundraising efforts, please notify The Ehlers-Danlos Society before you solicit any donations for your event, including underwriting, sponsorship, or in-kind gifts (such as food, printing, etc.).
  • All checks for event proceeds should be made payable to “The Ehlers-Danlos Society” Contributions are tax-deductible only if there are made directly to The Ehlers-Danlos Society, not the third-party event organizer.
  • Event proceeds should be submitted to The Ehlers-Danlos Society within 30 days after the event to receive proper recognition and tax information.
Contact Name(Required)
Preferred contact method
(Please be as detailed as possible.)
(If TBD, list approximate)
(gross is before expenses) -- $/£/Other
(i.e. ticket sales, sponsorships, auction, etc.)
The event organizers are responsible for all details of the event, including but not limited to: event underwriting, event expenses, volunteer recruitment, promotional materials, all day-of needs, obtaining necessary liability insurance and permits (i.e. raffles).

After you submit this form, we will send you a contract to complete.

Thank you for your support of the The Ehlers-Danlos Society

USA Headquarters
PO Box 87463
Montgomery Village, MD 20886
      European Office
Office 7, 35-37 Ludgate Hill

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