Published: 19/05/2016 Tags: Ehlers-Danlos in the News

To My Partner Who Has Watched My Health Decline

We were only 13 and 14 when we got together. It was a bit of a whirlwind, if you want to call it that — we went from barely knowing each other to being in a relationship. Yet, we’re still here, nearly eight years later, and I’m nearly 21 and you’ve already turned 22. You were there when my condition first made itself known — though then, of course, we didn’t know what it was. That was when there was still hope I might recover completely.

The worst thing was, I thought I had. I had my surgery on my left knee, and everything was fine. It subluxed still, but it was nowhere near as bad as it was. Then my right knee started, and the same thing happened. I still had hope. We still had hope. You were there, by my side, helping me through what was happening.

Of course, we now know I am a sufferer of an incurable condition that isn’t going to go away. It impacts our daily lives, from where we can go to more intimate aspects of our lives. You never complain. You are attentive, you are caring and you are wonderful. You have taken on the role of not just my partner — you are my rock. You are my constant through the changes I am currently facing. You listen when I tell you it is not easy. You help me in any way you can when I tell you I am in pain. You have ways of making me feel better that only you can do.

Read the complete original article

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society bi-weekly newsletter