Imagine a world where every person living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) receives the care, support, and understanding they need to thrive.
In 2024, your generosity helped us take bold steps toward making this vision a reality.
Here’s how you turned our mission of CARE into action this year:
C is for CARE:
- Over 4,600 community members found connection, support, and hope through our helpline and virtual support groups. These lifelines have helped so many feel seen and heard during their most challenging moments.
- Our Inspire online community grew to over 140,000 strong, offering advice, encouragement, and solidarity to zebras worldwide.
- On social media, our communities grew to over 300,000, spreading awareness, building connections, and amplifying the strength of the zebra community.
A is for ACCESS:
- 104 support groups and organizations in 21 countries joined our Global Alliance this year, working hand in hand to ensure that they have access to the resources and care they need.
R is for RESEARCH:
- Your support funded an incredible $10 million in research grants and studies in 2024, advancing breakthroughs in diagnosis, treatment, and care. Every dollar moves us closer to answers that will transform lives and give hope to those waiting for solutions.
E is for EDUCATION:
- Attendees from 42 countries joined our hybrid events, learning from the world’s leading experts. These events empower patients and caregivers while equipping healthcare professionals to provide better care.
- Our EDS ECHO program celebrated 5 years of transforming healthcare. This year alone, 418 new healthcare professionals from around the globe joined the program, bringing the total to 2,234 participants from 52 countries. EDS ECHO equips doctors, therapists, and specialists with the knowledge they need to diagnose and support EDS and HSD patients. It means fewer people dismissed, more lives changed, and more hope delivered.
Every story of hope, progress, and connection this year was made possible by you.
As we close 2024, let’s continue to create brighter futures together. Your gift today will be matched dollar for dollar, doubling your impact for the EDS and HSD community.
Don’t wait—make your tax-deductible donation before December 31. Together, we dazzle.