Give Today!

Double Your Impact with the Matching Gift Challenge! Until January 31st, a donor whose family understands the journey of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) will match your donations up to $300,000. Your support now means double the progress!

We are 91% of the way towards the goal — Make your donation today. Your generosity is the spark we need!

Double Donations = Double Progress!

Our helpline faces increased demands on its service and continues providing email and telephone support to those in desperate need worldwide. 10-15% of calls are from health professionals looking to help their patients.

Virtual Let’s Chat support groups connect people worldwide to peer support and community; many meet someone else with EDS or HSD for the first time. They are a true lifeline for so many.

In 2023, we established global Centers and Networks of Excellence for EDS and HSD. The two initial cohorts include 23 Centers and Networks from eight countries: Australia, Canada, France, Germany, Italy, Kuwait, the United Kingdom, and the United States, comprised of more than 30 institutions and 30 areas of expertise.  ⁠

Together, they make a crucial step towards achieving our mission of increasing the availability of clinical services, decreasing the diagnostic odyssey, and standardizing communication and care for those impacted by EDS and HSD.

Our focus is clear: advancing equitable therapies for EDS and HSD. We’re committed to fostering groundbreaking research that delves into the intricate complexities of these conditions. We aim to uncover the most effective treatment pathways, understand the progression of these conditions, investigate the genetic underpinnings of hypermobile EDS and HSD, and shed light on the prevalence of all EDS and HSD types.

Additionally, we’re dedicated to exploring the connections between EDS, HSD, and other related conditions like postural orthostatic tachycardia syndrome and mast cell activation syndrome.

Already, 1,880 health professionals from 50 countries have joined our award-winning EDS ECHO educational program, dedicated to diagnosing and supporting patients. Their increased knowledge and empathy equip them to navigate the complexities of patients’ lives, providing improved care and treatment.

Our 2023 survey showed that 50% had increased the number of people they saw with EDS and HSD. Of the other 50%, one-third saw more complex cases. We have excellent feedback on how the program is supporting their practice and improving the care they can offer patients.

Give Today

Every gift counts. 

Together, we can advance care, access, research, and education for people and families living with EDS and HSD, worldwide. 

Our strength begins with hope, our hope begins with YOU. 

United States
As a 501c3 organization, your donation is a tax-deductible charitable contribution to the extent allowed by the law. EIN# 38-2813140. To donate by mail, send a check (payable to The Ehlers-Danlos Society) to 447 Broadway, 2nd FL #670, New York, NY 10013; USA. Certain states require written disclosures for nonprofit organizations soliciting contributions. Please click here for individual state disclosures.

United Kingdom
As a registered charity in England and Wales (1180984), your donation is eligible for Gift Aid to the extent allowed by the law. Companies House Number 10722868. To donate by mail, send a cheque (payable to The Ehlers-Danlos Society) to Office 7; 35-37 Ludgate Hill; London, EC4M 7JN; UK. To donate from UK/EU online click/tap here.

The Ehlers-Danlos Society uses The Network for Good platform to receive online donations and their details will appear on your credit card statement following a donation to our organization. Network for Good’s Donor Advised Fund is an accredited charity by the Better Business Bureau. 

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