The Department of Work and Pensions (DWP) has put out a call for evidence for feedback on how PIP is working. Having a rare disease can put an extra hurdle in place for people trying to claim benefits such as PIP. If you have claimed PIP in the past, please tell the DWP about your experience here.
Virtual Support Groups
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.