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Statement from The Ehlers-Danlos Society, The HMSA, and Ehlers-Danlos Support UK regarding changes in the law in the United Kingdom
14th November 2018
This statement is for people with chronic pain and hypermobility disorders such as hypermobility spectrum disorder and Ehlers-Danlos syndrome. It is for people in the UK, or non-UK patients being treated by doctors in the UK.
As of the 1st November 2018 the UK Government has changed the law such that doctors can prescribe cannabis-based medicines.
However, the doctor must be a specialist consultant, and the conditions for which these medicines might be used at present are multiple sclerosis; epilepsy; and nausea and vomiting caused by chemotherapy. Even then it must be that all other treatments have been tried first, and the risks and benefits considered carefully.
Currently there are no licensed cannabis-based medicines for chronic pain in the UK. This may change in the coming years with new drugs, or there may in the future be guidance from the National Institute for Health and Clinical Excellence (NICE) and other organisations that would allow pain specialist doctors to prescribe such medication.
For now, we are advising our members that they should not expect that their doctor in the UK will be able to prescribe a cannabis-based treatment for chronic pain or muscle spasm for hypermobility-related conditions, or any form of chronic widespread pain such as fibromyalgia.
We will support research and guideline development where we are able to; and, monitor the situation and advise our members as this changes.
If you would like to read more about the change in the UK law and the Department of Health and Social Care’s position on this you may find the letters referenced below a helpful start. These letters have been published by the Chief Medical Officer, National Medical Director, and Chief Pharmaceutical Officer of NHS England; and, The Chief Medical Officer for Scotland.
Donna Wicks, Chief Executive Officer, and Dr Philip Bull, Medical Adviser and Trustee, HMSA
Kay Julier, Managing Director, and Dr Hanadi Kazkaz Chief Medical Officer, Ehlers-Danlos Support UK, and
Lara Bloom, International Executive Director, and Dr Alan Hakim, Dir. Of Education, The Ehlers-Danlos Society
Categorized in: Society News