Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.
Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.
Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.
Upcoming Groups
Below is a list of all the upcoming Virtual Support Groups for the month of October. Feel free to mark these dates in your calendar, and bookmark this page to easily find the Zoom link for the group of your choice:
Let’s Chat: EDS and HSD
Sunday, October 4, at 1:00pm ET (US & Canada) / 6:00pm BST (UK)
Zoom Link Meeting ID: 399 693 619
Friday, October 16, at 8:00pm ET (US & Canada)
Zoom Link Meeting ID: 713 773 094
Tuesday, October 20, at 12:00pm ET (US & Canada) / 5:00pm BST (UK)
Zoom Link Meeting ID: 8644 929 8034
Thursday, October 29, at 7:00pm ET (US & Canada) / 11am GMT (UK)
Zoom Link Meeting ID: 8222 026 6197
Let’s Chat: Parents
Thursday, October 8, at 1:00pm ET (US & Canada) / 6:00pm BST (UK)
Zoom Link Meeting ID: 970 183 279
Let’s Chat: vEDS Parents
Friday, October 9, at 1:00pm ET (US & Canada) / 6:00pm BST (UK)
Let’s Chat: LGBTQIA+
Sunday, October 11, at 1:00pm ET (US & Canada) / 6:00pm BST (UK)
Zoom Link Meeting ID: 8321 309 0975
Let’s Chat: vEDS
Friday, October 16, at 1:00pm ET (US & Canada) / 6:00pm BST (UK)
For audio-only, find your local number and use the corresponding meeting ID above.
Let's Chat: EDS and HSD
Tuesday, September 15, at 7:00pm ET (US & Canada) / Midnight BST (UK) / September 16 at 9:00am AEST Zoom Link
Meeting ID: 8997 7769 808
Friday, September 18, at 8:00pm ET (US & Canada) Zoom Link
Meeting ID: 713 773 094
Tuesday, September 22, at 12:00pm ET (US & Canada) / 5:00pm BST (UK) Zoom Link
Meeting ID: 8448 4110 196
For audio-only, find your local number and use the corresponding meeting ID from above.
Sunday, October 4, at 1:00pm ET (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Friday, October 16, at 8:00pm ET (US & Canada) Zoom Link
Meeting ID: 713 773 094
Tuesday, October 20, at 12:00pm ET (US & Canada) / 5:00pm BST (UK) Zoom Link
Meeting ID: 8644 9298 034
Thursday, October 29, at 7:00pm ET (US & Canada) / 11pm GMT (UK) / October 28 at 9:00am AEST Zoom Link
Meeting ID: 8222 0266 197
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Sunday, November 1, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK) Zoom Link
Meeting ID: 399 693 619
Tuesday, November 10, at 12:00pm EST (US & Canada) / 5:00pm GMT (UK) Zoom Link TBC
Friday, November 20, at 8:00pm EST (US & Canada) Zoom Link
Meeting ID: 713 773 094
Tuesday, November 24, at 7:00pm EST (US & Canada) / Midnight GMT (UK) / November 25 at 9:00am AEST (Australia) Zoom Link TBC
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Tuesday, December 1, at 12:00pm EST (US & Canada) / 5:00pm GMT (UK) Zoom Link TBC
Sunday, December 6, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK) Zoom Link
Meeting ID: 399 693 619
Friday, December 18, at 8:00pm EST (US & Canada) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Monthly Support Groups
Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.
The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.
If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).
Please register through this link.
Quarterly Support Groups
Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2020: October 8
Zoom Link
For audio-only, find your local number and use Meeting ID: 970 183 279
First Friday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2020: November 5
Zoom Link
For audio-only, find your local number and use Meeting ID: 557 532 211
Third Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2020: September 17, December 17
Zoom Link
For audio-only, find your local number and use Meeting ID: 403 897 354
Upcoming meeting dates in 2020/21:
October 11, 2020, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8321 3090 975
February 21, 2021, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK) Zoom Link
Meeting ID: 8866 5735 408
June 6, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8761 7576 481
October 24, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8232 4061 398
For audio-only, find your local number and use the corresponding meeting ID above.