We know how much our Let’s Chat: Virtual Support Groups have meant to so many in our community. These sessions have provided a safe space for connection, understanding, and mutual support, and we are so grateful to every person who has shared their experience and supported others through these calls.

As we look ahead, we are carefully focusing our capacity on some of our organization’s key goals, improving global diagnosis, care, and access to support for everyone living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). To do this effectively, we’ve made the difficult decision to pause the Let’s Chat: Virtual Support Groups for now.

But while these calls are on hold, connection and support are still very much here:

• Our Support Group & Charity Directory includes over 100 groups across dozens of countries, many of which offer virtual or in-person sessions to connect you with others in your region or language.
• Our message board on Inspire has over 150,000 members and offers a searchable, moderated space where you can ask questions, share experiences, and find community. In the coming weeks, we will be creating spaces within Inspire for each of the communities we currently support through our Let’s Chat groups.
• Our website continues to grow as a hub of trusted information, practical resources, our Healthcare Professionals Directory, and lived experience stories, available in 22 languages.
• We have a comprehensive mental health resources webpage with information designed to support different communities.
• If you are in a crisis or need someone to talk to, we encourage you to use Find a Helpline to connect with a local crisis line.

We are committed to exploring the best ways to provide meaningful peer support in the future, and we’ll keep you informed as plans develop.

Thank you for being part of this extraordinary global community. You are not alone, and we are here with you.

With gratitude,
The Ehlers-Danlos Society Team