Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.
Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.
Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.
This year has made it more important than ever to make connection and support of all kinds more accessible to everyone in the EDS and HSD community, virtually. The Ehlers-Danlos Society has always been dedicated to hosting regular virtual support groups, and since March we have offered additional groups at different times to give easier access to different time zones.
As we look forward to 2021 we would like to hear your feedback on our Let’s Chat virtual support groups! Whether you’re a regular attendee or if you’ve never heard of our groups, we would like to hear your thoughts on our groups; the types of groups we offer, what time we offer them, and what we could improve about the groups themselves.
Take our Let’s Chat virtual support groups community survey using the button below!
Upcoming Groups
Below is a list of all the upcoming Virtual Support Groups for the month of March. Feel free to mark these dates in your calendar, and bookmark this page to easily find the Zoom link for the group of your choice:
Let’s Chat: EDS and HSD
Tuesday, March 2, at 7:00pm ET (US & Canada) / Midnight GMT (UK) / 11:00am AEDT (Australia)
Zoom Link Meeting ID: 8531 2251 438
Sunday, March 7, at 1:00pm ET (US & Canada) / 6:00pm GMT (UK)
Zoom Link Meeting ID: 399 693 619
Friday, March 19, at 8:00pm EDT (US & Canada) / Midnight GMT (UK) / 11:00am AEDT (Australia)
Zoom Link Meeting ID: 713 773 094
Let’s Chat: vEDS Parents
Friday, March 12, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK)
Let’s Chat: Men
Thursday, March 18, at 1:00pm EDT (US & Canada) / 5:00pm GMT (UK)
Zoom Link Meeting ID: 8249 5972 532
Let’s Chat: vEDS
Friday, March 19 at 1:00pm EDT (US & Canada) / 5:00pm GMT (UK)
For audio-only, find your local number and use the corresponding meeting ID above.
Let's Chat: EDS and HSD
Tuesday, March 2, at 7:00pm EST (US & Canada) / Midnight GMT (UK) Zoom Link
Meeting ID: 8531 2251 438
Sunday, March 7, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK) Zoom Link
Meeting ID: 399 693 619
Friday, March 19, at 8:00pm EDT (US & Canada) / Midnight GMT (UK) / 11:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Tuesday, April 6, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 11:00am AEDT (Australia) Zoom Link
Meeting ID: 8940 9802 738
Friday, April 16, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
Sunday, April 18, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Tuesday, April 27, at 12:00pm EST (US & Canada) / 5:00pm BST (UK) Zoom Link
Meeting ID: 8359 8418 282
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Sunday, May 2, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Tuesday, May 4, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEDT (Australia) Zoom Link TBC
Meeting ID: TBC
Friday, May 21, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Tuesday, June 1, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEDT (Australia) Zoom Link TBC
Meeting ID: TBC
Sunday, June 6, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Friday, June 18, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Sunday, July 4, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Tuesday, July 9, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEDT (Australia) Zoom Link TBC
Meeting ID: TBC
Friday, July 16, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Monthly Support Groups
Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.
The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.
If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).
Please register through this link.
Quarterly Support Groups
Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2021:
April 8, July 8
Zoom Link
For audio-only, find your local number and use Meeting ID: 970 183 279
First Friday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2021:
May 6
Zoom Link
For audio-only, find your local number and use Meeting ID: 557 532 211
Third Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2021:
March 18
Zoom Link
For audio-only, find your local number and use Meeting ID: 8249 5972 532
Meeting dates for 2021 are TBC.
Upcoming meeting dates in 2021:
June 6, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8761 7576 481
October 24, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8232 4061 398
For audio-only, find your local number and use the corresponding meeting ID above.