Virtual Support Groups

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences? Our virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support. Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.

Let’s Chat. We know members of our community are feeling overwhelmed with the current situation with COVID-19 [Coronavirus]. It may seem a daunting time, and it is important to look after our emotional and mental health. 

Alongside our regular virtual support groups, Helpline, and scheduled webinars that continue as normal, the Ehlers-Danlos Society has set up additional virtual 1-hour events to provide a space where our community can talk with each other and members of the Society’s team.  Each event will be a chance to talk through your questions, speak with others for support, and address practical challenges that are arising.

Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mentall health emergency, call your country’s emergency number immediately.

LET’S CHAT GROUPS

Friday, March 27, 1:00 pm EDT (US and Canada) / 5:00 pm GMT Zoom Link

Tuesday, March 31, 12 noon EDT (US and Canada) / 5:00 pm BST Zoom Link

Wednesday, April 1, 7:00pm EDT (US and Canada) / Midnight BST / Thursday, April 2, 10:00 am AEDT (Australia) Zoom Link

Tuesday, April 7, 7:00pm EDT (US and Canada) / Midnight BST / Wednesday, April 8, 10:00 am AEDT (Australia) Zoom Link

Thursday, April 9, 12 noon EDT (US and Canada) / 5:00 pm BST Zoom Link

Tuesday, April 14, 7:00pm EDT (US and Canada) / Midnight BST / Wednesday, April 15, 10:00 am AEDT (Australia) Zoom Link

Thursday, April 16, 12 noon EDT (US and Canada) / 5:00 pm BST Zoom Link

Monday, April 20, 12 noon EDT (US and Canada) / 5:00 pm BST Zoom Link

Tuesday, April 21, 7:00pm EDT (US and Canada) / Midnight BST / Wednesday, April 22, 10:00 am AEDT (Australia) Zoom Link

Thursday, April 23, 12 noon EDT (US and Canada) 5:00 pm BST Zoom Link

Sunday, April 26, 7:00pm EDT (US and Canada) / Midnight BST / Monday, April 27, 10:00 am AEDT (Australia) Zoom Link

Wednesday, April 29, 12 noon EDT (US and Canada) / 5:00 pm BST Zoom Link

Use thetimezoneconverter.com to find the meeting time in your timezone.

YOUNG ADULTS EDS AND HSD VIRTUAL SUPPORT GROUP

We are delighted to announce that we will be partnering with Our Odyssey to run a virtual support group for young adults living with EDS and HSD, aged between 18 and 30. We wanted to provide a safe space where young adults can share their experiences and tips with other young adults, and connect with people in the community, virtually. The group will be ran via Zoom, and the link will be below.

This group will meet at the scheduled dates and times below:

Tuesday, March 30, 2020, 6:30pm EST Zoom Link

Use thetimezoneconverter.com to find the meeting time in your timezone.

MONTHLY GROUPS

General Virtual Support Group #1

First (1st) Sunday of each month at 1:00 pm Eastern Time (US/Canada)
Join Zoom meeting https://zoom.us/j/399693619
For audio only, find your local number: https://zoom.us/u/aefbyKvagA and use Meeting ID: 399 693 619

General Virtual Support Group #2

Third (3rd) Friday of each month at 8:00 pm Eastern Time (US/Canada)
Join Zoom meeting https://zoom.us/j/713773094

For audio only, find your local number: https://zoom.us/u/aefbyKvagA and use Meeting ID: 713 773 094

vEDS Virtual Support Group

Third (3rd) Friday of each month at 1:00 pm Eastern Time (US/Canada)
Please register through this link.

vEDS Parents Virtual Support Group

Second (2nd) Friday of each month at 1:00 pm Eastern Time (US/Canada)
Please register through this link.

QUARTERLY GROUPS

Parents Virtual Support Group

Second (2nd) Thursday of the month at 1:00 pm Eastern Time (US/Canada) in
2020: January 9, April 9, July 9, October 8
Join Zoom meeting https://zoom.us/j/970183279
For audio only, find your local number: https://zoom.us/u/aefbyKvagA and use Meeting ID: 970 183 279

Partners and Spouses Virtual Support Group

First (1st) Friday of the month at 1:00 pm Eastern Time (US/Canada) in
2020: February 7, May 8, August 7, November 5
Join Zoom meeting https://zoom.us/j/557532211
For audio only, find your local number: https://zoom.us/u/aefbyKvagA and use Meeting ID: 557 532 211

Men with EDS and HSD Virtual Support Group

Third (3rd) Thursday of the month at 1:00 pm Eastern Time (US/Canada) in
2020: March 19, June 18, September 17, December 17
Join Zoom meeting https://zoom.us/j/403897354
For audio only, find your local number: https://zoom.us/u/aefbyKvagA and use Meeting ID: 403 897 354