Let’s Chat – Virtual Support Groups

EDS and HSD Virtual Support Groups

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.

Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.

Register for Upcoming Let’s Chat Groups

✅ Our Let’s Chat virtual support groups require registration to attend.
 
📧 Registering will give you information on how to join the upcoming group and a reminder 1-day before the group will take place.
 
📅 Choose the group you’d like to attend from the list below or the calendar, and complete the RSVP form.
 
You only need to register once for one group series. You will receive a reminder for each upcoming group one day before, with information on how to join each week.
 
For example, if you would like to attend the EDS and HSD group on Sundays at 1:00 pm EDT, and the group on Tuesdays at 12:00 pm EDT, you will need to register for both. If you would like to attend the Sunday group each month you will only need to register once.
 
One-time registration is applicable for all monthly* and quarterly groups; once registered you will receive reminders for all future groups. Registration confirmation can take up to five minutes to come through via email, if you do not receive your confirmation please do contact our team at helpline@ehlers-danlos.com
 
*Monthly vEDS, vEDS Parents, and Teens groups require approval to join and can be registered for via the link below. If you have previously registered for these groups, you will not need to re-register. 

Please note: Registration confirmation will take a few minutes to come through via email, if you have any issues joining a group please do contact our team.

Upcoming Groups

Below is a list of all the upcoming Virtual Support Groups for this month. RSVP to the groups you’d like to attend to receive information on how to join, and to receive a reminder email the day before the group will take place.
Please note that the meeting dates and times are subject to change. Please check your email and the calendar below for updates.

Views Navigation

Event Views Navigation

Today

Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.

Let's Chat: EDS and HSD

October Groups

Sunday, October 2, at 1:00pm EST (US & Canada) / 6:00pm BST (UK)

Register here

Monday, September 10, 7:00pm EST (US & Canada) / Midnight BST (UK) / 11:00am AEST (Australia)

Register here

Tuesday, September 18, 12:00pm EDT (US & Canada) / 5:00pm BST (UK)

Register here

November Groups

Sunday, November 6, at 1:00pm EDT (US & Canada) / 6:00pm GMT (UK)

Register here

Monday, November 14, at 7:00pm EDT (US & Canada) / Midnight GMT (UK) / 11:00am AEDT (Australia)

Register here

Tuesday, November 15, at 12:00pm EST (US & Canada) / 5:00pm BST (UK)

Register here

December Groups

Sunday, December 4, at 1:00pm EDT (US & Canada) / 6:00pm GMT (UK)

Register here

Monday, December 12, at 7:00pm EDT (US & Canada) / Midnight GMT (UK) / 11:00am AEDT (Australia)

Register here

Tuesday, December 20, at 12:00pm EST (US & Canada) / 5:00pm BST (UK)

Register here

Monthly Support Groups

Let's Chat: vEDS

Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.

The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.

Let's Chat: vEDS Parents

If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).

Please register through this link.

Let's Chat: Teens (Age 13-17)

We provide a safe space where our Junior Zebras can talk with each other and members of the Society’s team. The Let’s Chat: Teens group takes place on the third Sunday of each month, at 1:00pm ET (US & Canada) / 6:00pm GMT/BST (UK), and is a chance for Junior Zebras to make friends who truly understand, talk through their questions, speak with others for support, and problem solve for practical challenges they experience. The Teens group is suitable for those aged 13- 17.

Register here

Quarterly Support Groups

Let's Chat: Parents

Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2022/23:
October 13, January 12

Let's Chat: Partners and Spouses

Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2022/23:
November 10, February 9

Let's Chat: Men with EDS and HSD

Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2022:
September 8, December 8

Let's Chat: LGBTQIA+

Upcoming meeting dates in 2022:

September 1, December 1