Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.
Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.
Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.
Upcoming Groups
Below is a list of all the upcoming Virtual Support Groups for the month of May. Feel free to mark these dates in your calendar, and bookmark this page to easily find the Zoom link for the group of your choice:
Let’s Chat: EDS and HSD
Sunday, May 2, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)
Zoom Link Meeting ID: 399 693 619
Tuesday, May 4, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)
Zoom Link Meeting ID: 8155 7460 483
Friday, May 21, at 8:00pm EDT (US & Canada) / 10:00am AEST (Australia)
Zoom Link Meeting ID: 713 773 094
Tuesday, May 25, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK)
Zoom Link Meeting ID: 8390 8539 534
Let’s Chat: Partners and Spouses
Thursday, May 13, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)
Zoom Link Meeting ID: 557 532 211
Let’s Chat: vEDS Parents
Friday, May 14, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)
Let’s Chat: vEDS
Friday, May 21, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)
Let’s Chat: Young Adults
Thursday, May 27, at 6:00pm EDT (US & Canada) / 11:00pm BST (UK) / 8:00am AEST (Australia)
Zoom Link Meeting ID: 8995 3793 803
For audio-only, find your local number and use the corresponding meeting ID above.
Let's Chat: EDS and HSD
Sunday, May 2, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Tuesday, May 4, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEDT (Australia) Zoom Link
Meeting ID: 8155 7460 483
Friday, May 21, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
Tuesday, May 25, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK) Zoom Link
Meeting ID: 8390 8539 534
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Tuesday, June 1, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEDT (Australia) Zoom Link
Meeting ID: 8155 7460 483
Sunday, June 6, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Friday, June 18, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Sunday, July 4, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 399 693 619
Tuesday, July 6, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEDT (Australia) Zoom Link
Meeting ID: 8155 7460 483
Friday, July 16, at 8:00pm EDT (US & Canada) / 10:00am AEDT (Australia) Zoom Link
Meeting ID: 713 773 094
For audio-only, find your local number and use the corresponding meeting ID above once confirmed.
Monthly Support Groups
Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.
The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.
If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).
Please register through this link.
Quarterly Support Groups
Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2021:
July 8, October 14
Zoom Link
For audio-only, find your local number and use Meeting ID: 970 183 279
Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2021:
May 13, August 12, November 11
Zoom Link
For audio-only, find your local number and use Meeting ID: 557 532 211
Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2021:
June 10, September 9, December 9
Zoom Link
For audio-only, find your local number and use Meeting ID: 8249 5972 532
Meeting dates for 2021 are TBC.
Upcoming meeting dates in 2021:
Saturday, June 19, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8761 7576 481
Sunday, October 24, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK) Zoom Link
Meeting ID: 8232 4061 398
For audio-only, find your local number and use the corresponding meeting ID above.