Virtual Support Groups

EDS and HSD Virtual Support Groups

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.

Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.

Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.

Weekly Let's Chat Groups

We know members of our community are feeling overwhelmed with the current situation with COVID-19 [Coronavirus]. It may seem a daunting time, and it is important to look after our emotional and mental health. 

Alongside our general monthly support groups, we have set up additional virtual 1-hour events to provide a space where our community can talk with each other and members of the Society’s team. Each event will be a chance to talk through your questions, speak with others for support, and address practical challenges that are arising in light of COVID-19.

Tuesday, June 30, at 7:00pm EDT (US and Canada) / Midnight BST (UK) / July 1 at 9:00am AEST (Australia) Zoom link

Meeting ID: 8280 1024 307

For audio-only, find your local number and use the corresponding meeting ID above.

Tuesday, July 14, at 12:00pm ET (US & Canada) / 5:00pm BST (UK) Zoom Link

Meeting ID: 8994 0512 203

 

Tuesday, July 28, at 7:00pm ET (US & Canada) / Midnight BST (UK) / July 29 at 9:00am AEST Zoom Link

Meeting ID: 8936 2346 551

 

For audio-only, find your local number and use the corresponding meeting ID above.

Monthly Support Groups

Our general monthly support groups are for individuals living with all types of Ehlers-Danlos syndromes, and hypermobility spectrum disorders:

 

First Sunday of each month at 1:00 pm Eastern Time (US/Canada) / 6:00 PM BST (UK) Zoom Link

For audio-only, find your local number and use Meeting ID: 399 693 619

 

Third Friday of each month at 8:00 pm Eastern Time (US/Canada) / 1:00 AM BST (UK) / 10 AM AEST (AU)  Zoom Link

For audio-only, find your local number and use Meeting ID: 713 773 094

Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.

The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.

If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).

Please register through this link.

Quarterly Support Groups

Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2020: July 9, October 8

Zoom Link
For audio-only, find your local number and use Meeting ID: 970 183 279

First Friday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2020: May 1, August 7, November 5

Zoom Link
For audio-only, find your local number and use Meeting ID: 557 532 211

Third Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2020: June 18, September 17, December 17

Zoom Link
For audio-only, find your local number and use Meeting ID: 403 897 354

Upcoming meeting dates in 2020:

Friday, July 24, at 5:30pm EDT Zoom Link

Friday, September 25, at 5:30pm EDT Zoom Link

Tuesday, December 15, at 6:30pm EDT Zoom Link

LGBTQIA+ Virtual Support Group

Save the date! Join our LGBTQ+ virtual online support group on Sunday, June 28 at 12:00 pm Eastern Time (US and Canada) Zoom Link