Let’s Chat – Virtual Support Groups

EDS and HSD Virtual Support Groups

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.

Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.

Register for Upcoming Let’s Chat Groups

✅ Starting from September 2021, all of our Let’s Chat virtual support groups will require registration to attend.
 
📧 Registering will give you information on how to join the upcoming group and a reminder 1-day before the group will take place.
 
📅 Choose the group you’d like to attend from the list below or the calendar, and complete the RSVP form.
 
You only need to register once for one group series. You will receive a reminder for each upcoming group one day before, with information on how to join each week.
 
For example, if you would like to attend the EDS and HSD group on Sundays at 1:00 pm EDT, and the group on Tuesdays at 12:00 pm EDT, you will need to register for both. If you would like to attend the Sunday group each month you will only need to register once.
 
One-time registration is applicable for all monthly* and quarterly groups; once registered you will receive reminders for all future groups. Registration confirmation can take up to five minutes to come through via email, if you do not receive your confirmation please do contact our team at helpline@ehlers-danlos.com
 
*Monthly vEDS, vEDS Parents, Kids, and Teens groups require approval to join and can be registered for via the link below. If you have previously registered for these groups, you will not need to re-register. 

Please note: Registration confirmation will take a few minutes to come through via email, if you have any issues joining a group please do contact our team.

Upcoming Groups

Below is a list of all the upcoming Virtual Support Groups for the months of September. RSVP to the groups you’d like to attend to receive information on how to join, and to receive a reminder email the day before the group will take place.

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Events for September 2021 › Virtual Support Groups

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Calendar of Events

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Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.

Let's Chat: EDS and HSD

Sunday, September 5, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)

Register here

Tuesday, September 7, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)

Register here

Tuesday, September 14, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK)

Register here

Friday, September 17, at 8:00pm EDT (US & Canada) / 10:00am AEST (Australia)

Register here

Sunday, October 3, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)

Register here 

Tuesday, October 5, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)

Register here

Friday, October 15, at 8:00pm EDT (US & Canada) / 10:00am AEST (Australia)

Register here

Tuesday, October 19, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK)

Register here

Tuesday, November 2, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)

Register here

Sunday, November 7, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)

Register here

Tuesday, November 16, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK)

Register here

Friday, November 19, at 8:00pm EDT (US & Canada) / 10:00am AEST (Australia)

Register here

Sunday, December 5, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)

Register here

Tuesday, December 7, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)

Register here

Friday, December 17, at 8:00pm EDT (US & Canada) / 10:00am AEST (Australia)

Register here

Tuesday, December 21, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK)

Register here

Monthly Support Groups

Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.

The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.

If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).

Please register through this link.

We provide a safe space where our Junior Zebras can talk with each other and members of the Society’s team. The Let’s Chat: Kids group takes place on the second Sunday of each month, at 1:00pm ET (US & Canada) / 6:00pm GMT/BST (UK), and is a chance for Junior Zebras to make friends who truly understand, talk through their questions, speak with others for support, and problem solve for practical challenges they experience. The Kids group is suitable for those aged 6- 12.

Register here

We provide a safe space where our Junior Zebras can talk with each other and members of the Society’s team. The Let’s Chat: Teens group takes place on the third Sunday of each month, at 1:00pm ET (US & Canada) / 6:00pm GMT/BST (UK), and is a chance for Junior Zebras to make friends who truly understand, talk through their questions, speak with others for support, and problem solve for practical challenges they experience. The Teens group is suitable for those aged 13- 17.

Register here

Quarterly Support Groups

Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2021:
October 21
Register here

Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2021:
November 11
Register here

Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).

Upcoming meeting dates in 2021:
September 9, December 9
Register here

Upcoming meeting dates in 2021:

Sunday, October 24, 2021, at 1:00pm EST (US & Canada) / 6:00pm BST (UK)

Register here