Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.
Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.
Register for Upcoming Let’s Chat Groups
Please note: Registration confirmation will take a few minutes to come through via email, if you have any issues joining a group please do contact our team.
Upcoming Groups
Below is a list of all the upcoming Virtual Support Groups for this month. RSVP to the groups you’d like to attend to receive information on how to join, and to receive a reminder email the day before the group will take place.
Please note that the meeting dates and times are subject to change. Please check your email and the calendar below for updates.
Meeting times listed are in Eastern Time (the US and Canada). Use thetimezoneconverter.com to find the meeting time in your timezone.
Let's Chat: EDS and HSD
Sunday, May 1, at 1:00pm EDT (US & Canada) / 6:00pm BST (UK)
Tuesday, May 3, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)
Monday, May 9, at 7:00pm EDT (US & Canada) / Midnight BST (UK) / 9:00am AEST (Australia)
Tuesday, May 17, at 12:00pm EDT (US & Canada) / 5:00pm BST (UK)
Tuesday, June 7, at 7:00pm EST (US & Canada) / Midnight BST (UK) / 11:00am AEDT (Australia)
Sunday, June 12, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK)
Monday, June 13, at 7:00pm EST (US & Canada) / Midnight GMT (UK) / 11:00am AEDT (Australia)
Tuesday, June 21, at 12:00pm EST (US & Canada) / 5:00pm GMT (UK)
Sunday, July 3, at 1:00pm EST (US & Canada) / 6:00pm GMT (UK)
Tuesday, July 5, at 7:00pm EST (US & Canada) / Midnight GMT (UK) / 9:00am AEST (Australia)
Monday, July 11, 7:00pm EST (US & Canada) / Midnight GMT (UK) / 9:00am AEST (Australia)
Tuesday, July 19, 12:00pm EDT (US & Canada) / 5:00pm BST (UK)
Monthly Support Groups
Our monthly vascular Ehlers-Danlos syndrome (vEDS) virtual support group is for individuals living with vEDS and their families.
The groups take place on the third Friday of each month at 1:00 pm Eastern Time (US/Canada). Please register through this link.
If you are a parent living with vascular Ehlers-Danlos syndrome (vEDS), or a parent of a child who has vEDS, join us for our virtual support group on the second Friday of each month at 1:00 pm Eastern Time (US/Canada).
Please register through this link.
We provide a safe space where our Junior Zebras can talk with each other and members of the Society’s team. The Let’s Chat: Teens group takes place on the third Sunday of each month, at 1:00pm ET (US & Canada) / 6:00pm GMT/BST (UK), and is a chance for Junior Zebras to make friends who truly understand, talk through their questions, speak with others for support, and problem solve for practical challenges they experience. The Teens group is suitable for those aged 13- 17.
Quarterly Support Groups
Our quarterly support meeting for parents living with EDS and HSD, and for parents of children with EDS and HSD, takes place on the second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2022:
July 14
Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2022:
May 12, August 11
Register here
Second Thursday of the month at 1:00 pm Eastern Time (US/Canada).
Upcoming meeting dates in 2022:
June 9, September 8
Upcoming meeting dates in 2022 TBC.