Why Volunteer With Us?
Volunteering with The Ehlers-Danlos Society is a meaningful way to engage with your local or global community. By offering your time, skills, and passion, you help improve the lives of individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Through care, access, research, and education, we aim to increase early diagnosis, improve care, and foster global collaboration.
As a volunteer, you contribute to our vision: to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs. Volunteering also allows you to connect with others, grow personally, and make a difference.
Every volunteer brings unique skills and experiences—just like the stripes of a zebra, no two are the same. Together, we can help improve the lives of those affected by EDS and HSD.
Join Our Global Volunteer Community
At The Ehlers-Danlos Society, volunteers are the heart of everything we do. By offering your time, you will receive training, support, and guidance to make a positive impact. We offer a variety of opportunities—online and in-person—to match your skills, interests, and schedule.
From advocacy, awareness, research, education, to events, there’s a role for everyone, no matter your background or expertise.
Join Our Global Volunteer Team Today!
We’d love to hear from you! The Ehlers-Danlos Society welcomes anyone passionate about making a difference for those living with EDS and HSD.
Ready to make a difference? Sign up to volunteer with The Ehlers-Danlos Society today. For more details on the benefits of volunteering and our onboarding process, read our Volunteer Handbook.
Every role, whether short-term or long-term, is crucial in advancing our mission to provide care, access, research, and education. If no immediate role fits your skills, we’ll keep your information for up to 12 months and reach out when an opportunity arises.
Disclaimers:
- By submitting your application, you acknowledge that your personal information will be stored for up to 12 months, in line with our privacy policy. If a suitable role arises during this time, we will contact you. Your data will not be shared with third parties, and you can request its removal at any time.
- Volunteers under 18 must have written consent from a parent or legal guardian. Not all volunteer roles are available to minors. The Society follows child labor laws and can only accept volunteers under 18 in the UK and the USA.
