“Living with EDS and HSD” Webinar Schedule

The Ehlers-Danlos Society welcomes you to our webinar educational series, “Living with EDS and HSD,” dedicated to educating people diagnosed with the Ehlers-Danlos syndromes or hypermobility spectrum disorders, their loved ones, and anyone wishing to learn more about EDS, HSD, and myriad related disorders.

Presented by renowned medical professionals and experts in living with EDS and HSD, each webinar will focus on important topics of interest to the global EDS and HSD community.

The webinars are usually held on Wednesdays and are expected to last approximately one hour. Participants must sign up in advance at the links provided. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations will be recorded and become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel, https://www.youtube.com/TheEhlersDanlosSociety/”

Next Webinar: Tuesday, March 31, at 3:00 pm Eastern (US/Canada)

Jeannie Di Bon, MA, PMA-CPT: “Strengthening Your Hypermobile Core — A Home Exercise Approach for EDS, HSD, and Hypermobility”

Jeannie Di Bon, a Movement therapist with hEDS, will be discussing her unique online exercise program—Strengthen Your Hypermobile Core—in this webinar. This program has been written and designed by Jeannie who used her own extensive research and movement method to rehab her body and mind out of chronic pain. Jeannie gave this online course last week to the EDS community and looks forward to chatting in depth about the course and answering your questions.

To join in the webinar live, please register here via Zoom. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel.

Wednesday, April 1, at 1:00 pm Eastern (US/Canada)

Serwet Demirdas, MD, PhD: “Classical-like EDS”

Dr. Serwet Demirdas is a Clinical Geneticist at the Erasmus Center in Rotterdam and has several publications concerning clEDS and other types of EDS. Along with seeing many patients in daily practice, Dr. Demirdas is a member of the international EDS Consortium and is part of the rarer types working group. She coordinates the research for clEDS in the Netherlands, and is working closely with medical professionals in the Netherlands, the UK, and Belgium on research concerning clEDS and vascular EDS. Join us for this webinar, as Dr. Demirdas gives an overview of clEDS, and talks about current and ongoing research in the area.

⁠To join in the webinar live, please register here via Zoom. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel.

Thursday, April 2, at 2:00 pm Eastern (US/Canada)

managing mental health during stressful times webinar

Marisa Bergfield: “Managing Mental Health During Stressful Times”

Join us as our very own Marisa Bergfield speaks on the importance of taking care of your mental health during stressful times, like we are seeing now in the wake of the worldwide spread of COVID-19.

We know that many in our community are feeling overwhelmed with the current global situation, and we want to provide a safe space for our community to talk and learn about practical ways to take care of your mental health, and ways deal with events like COVID-19.

To join in the webinar live, please register here via Zoom. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel.