“Living with EDS and HSD” Webinar Schedule

The Ehlers-Danlos Society welcomes you to our webinar educational series, “Living with EDS and HSD,” dedicated to educating people diagnosed with the Ehlers-Danlos syndromes or hypermobility spectrum disorders, their loved ones, and anyone wishing to learn more about EDS, HSD, and myriad related disorders.

Presented by renowned medical professionals and experts in living with EDS and HSD, each webinar will focus on important topics of interest to the global EDS and HSD community.

The webinars are usually held on Wednesdays and are expected to last approximately one hour. Participants must sign up in advance at the links provided. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations will be recorded and become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel, https://www.youtube.com/TheEhlersDanlosSociety/”

Next Webinar: January 24 at 3 PM Eastern (US/Canada)

Kathy Villareal: “A Discussion on Disability”

We are joined by Kathy Villareal, a fellow zebra with hypermobile Ehlers-Danlos syndrome, presenting this webinar as a way to start a conversation about disability, and hopefully that spark of conversation will grow and expand outside of this webinar.

This is a very important subject to discuss- including, but not limited to topics such as the many variables of disability involving EDS and HSD, the stigma around disabilities (both visible and invisible), and discussing many ways we can recognize and support each other’s disabilities.

Join us as we present this topic in tandem with our Breaking Barriers campaign this month.

To join in the webinar live, please register here Join Webinar – Zoom. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel.

Wednesday, February 5, at 2 PM Eastern (US/Canada)

Cristol Barrett O’Loughlin: “Caring for the Caregivers: Sensory Solutions for Caregiver CTSD (Chronic Traumatic Stress Disorder)”

From a fairytale family to losing three brothers, maternal advocate Cristol Barrett O’Loughlin, Founder and CEO of https://www.angelaidcares.org/ draws on personal tragedy to ease the suffering hearts of others. Her inspiring stories of courageous #RareMoms, reveal the secrets to sustainable self-care and wellness. Forget “PTSD”—more accurate is “CTSD” (Chronic Traumatic Stress)—as our rare community grapples with the realities of long-term caregiving and disease management. There is a purpose to our pain. With guided meditations and her signature infectious enthusiasm, Cristol gently nudges us all to move beyond “Why me?” into “What can I do to help others and to help myself?”

To join in the webinar live, please register here Join Webinar – Zoom. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel.

March 6 at 2 PM Eastern (US/Canada)

Eric L. Singman, MD, PhD: “Brain Injuries in EDS and HSD: Perspectives of a Neuro-opthamologist”

Dr. Eric Singman joins us to speak on how EDS and HSD patients can represent a challenge for teams treating brain injury. We will discuss some of the particulars about these challenges from the perspective of a neuro-ophthalmologist treating concussion patients.

To join in the webinar live, please register here Join Webinar – Zoom. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel.