“Living with EDS and HSD” Webinar Schedule

The Ehlers-Danlos Society welcomes you to our webinar educational series, “Living with EDS and HSD,” dedicated to educating people diagnosed with the Ehlers-Danlos syndromes or hypermobility spectrum disorders, their loved ones, and anyone wishing to learn more about EDS, HSD, and myriad related disorders.

Presented by renowned medical professionals and experts in living with EDS and HSD, each webinar will focus on important topics of interest to the global EDS and HSD community.

The webinars are usually held on Wednesdays and are expected to last approximately one hour. Participants must sign up in advance at the links provided. After sign-up, participants will receive an email with instructions on how to access the webinar. Presentations will be recorded and become available in the PREVIOUS WEBINARS PAGE as well as our YouTube channel (http://bit.ly/EDSocietyYouTube).

Next Webinar: Wednesday, September 18 at 2:00 pm EDT (US/Canada)

Jeannie Di Bon, MA, PMA-CPT

Jeannie Di Bon, MA, PMA-CPT: “The No Pain, No Strain Strategy to Move Pain-Free with EDS and Hypermobility — A Look Inside The Zebra Club”

We know we should be exercising regularly to help tone the connective tissue and support our joints. Research has shown that regular exercise will help improve and alleviate pain, stress, and fatigue. But with conditions like hypermobility and EDS, we are often unsure of what exercise we should be doing, how often we should be exercising and what is safe for us to do. We may have had previous exercise experiences that left us feeling worse or injured. There has been little comprehensive guidance available — until now. This webinar is a unique opportunity to learn more about the new innovation by Jeannie Di Bon called The Zebra Club.

Jeannie has spent the past two years creating The Zebra Club, an online platform for those with hypermobility, EDS, and chronic pain. It is designed with thought and care and will guide users through a journey of safe rehabilitation and exercise allowing them to return to, or start, a healthy movement program in the comfort of their own home. As someone with EDS and a previous chronic pain sufferer, Jeannie has thought of every aspect of living with EDS and hypermobility and offers movement solutions to allow a return to healthy, functional movement. Discover why The Zebra Club could be the solution for you in this webinar.

To sign up to participate in the webinar live, please visit Webinar Registration – Zoom. After signing up, you will receive an email with instructions on how to access the webinar. Presentations are recorded and (barring technical difficulties) become available on the previous webinars page as well as our YouTube channel (http://bit.ly/EDSocietyYouTube).

Scheduled Webinars
(calendar time = UTC)

December 2019

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  • Genetic Considerations in Having Children
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  • Alan and Fransiska
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