My favorite photo of me with my two children hangs in my kitchen. The photo, taken by my husband, Register photographer Mark Rightmire, is from our trip to Britain.
Spring daffodils are dancing around us. My daughter, Sarah, who turned 13 on our trip, looks healthy, happy and athletic.
Everyone reacts to the photo when they enter my kitchen. I always respond, “It was before Sarah got sick.”
In truth, we now know, she was sick even then.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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