Published: 06/04/2016 Tags: Ehlers-Danlos in the News

What’s wrong with my daughter? A mom describes the misery of an elusive diagnosis

My favorite photo of me with my two children hangs in my kitchen. The photo, taken by my husband, Register photographer Mark Rightmire, is from our trip to Britain.

Spring daffodils are dancing around us. My daughter, Sarah, who turned 13 on our trip, looks healthy, happy and athletic.

Everyone reacts to the photo when they enter my kitchen. I always respond, “It was before Sarah got sick.”

In truth, we now know, she was sick even then.

Read the complete original article

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society mailing list