Published: 11/04/2016 Tags: Ehlers-Danlos in the News

When doctors don’t know what’s wrong with your daughter

My favourite photo of me with my two children hangs in my kitchen. The photo, taken by my husband, is from our trip to Britain.

Spring daffodils are dancing around us. My daughter, Sarah, who turned 13 on our trip, looks healthy, happy and athletic.

Everyone reacts to the photo when they enter my kitchen. I always respond, “It was before Sarah got sick.”

In truth, we now know, she was sick even then.

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