Published: 23/06/2016 Tags: The Ehlers-Danlos Society News

#ZebraStrongEhlers-Danlos Society Global Learning Conference 2016

Time is Running Out! Register Now!

Join us for The Ehlers-Danlos Society Global Learning Conference 2016 at the Baltimore Hilton on July 14-16, 2016.

Click here for full details about this conference


  • Learn about the latest developments in research and care from the world’s top Ehlers-Danlos researchers and medical professionals
  • Connect with other patients, caregivers, and allies
  • Share your experiences—and learn how to build awareness
  • Show your strength at our first annual rally to raise awareness at Baltimore’s Inner Harbor featuring the world’s largest gathering of Ehlers-Danlos Zebras

Dynamic Kids & Teens Programs

Our conference offers safe space for young zebras 5-17 to meet others to share experience, friendship, and hope, as they learn how to become #ZebraStrong!

Register now! 

Click here to book tickets for the conference

“The Learning Conference is the one place I go where my disease isn’t invisible, and where everybody I talk to understands.” 

Hotel Information & Reservations

The Ehlers-Danlos Society has secured a discounted room rate of $164.00 per night plus tax at the Hilton Baltimore. Discounted room rates are available until Thursday, June 23, 2016 or until the block is filled. Please call 1-888-243-9694 and request The Ehlers-Danlos Society Conference room block to ensure you receive the discounted rate.

Click here for the event schedule


In keeping with our mission, will be granting a limited number of full-conference registration scholarships based on demonstrated need.

Click here for the scholarship application

Decisions will be made by June 30, 2016.

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

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