What is EDS and HSD Awareness Month?
Every May, people all over the world show their support for people who have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD). Our shared mission is important throughout the year, but May is a time we all come together, share experiences, and highlight what is needed to progress change!
For years now, the challenges of the COVID-19 pandemic have made the situation even more difficult for those living with EDS and HSD with delayed or canceled appointments, treatments, genetic testing, and diagnosis, or to access care and therapies they depend on for quality of life.
Now more than ever, we need the global EDS and HSD community, health professionals, businesses, policy-makers, and individuals across the world to help us push forward with research and education to improve care – Together we dazzle!