Ten Years of Impact. One Powerful Month to Go Further.
May is EDS and HSD Awareness Month, and every year, the global Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) community joins together to raise awareness and move the progress forward.
But this year, it is more than just awareness. It is celebrating, storytelling, and taking action.
In 2026, we mark ten years of making a significant difference in the world, thanks to people like you. From lighting up landmarks to sharing your stories, walking and rolling in your communities, and raising critical dollars for research and treatment, you’ve made what’s possible a reality.
We invite you to join us in May to raise awareness and funds for a future in which diagnosis happens sooner, care is coordinated, and everyone is believed.
Together, we’ve changed lives. Let’s keep going.
Ways to Get Involved
Create Your Own Fundraising Page in Minutes – Creating your fundraiser is simple.
Walk and Roll Challenge – Join from anywhere in the world, at your pace and place.
May Merch and Fundraising Incentives – Raise $60+ to receive exclusive 10-Year anniversary prizes!
Our Goal: Raise $100,000 in May to fund research, improve care, and change lives. Join the Movement.
Order May Awareness Merchandise
May Awareness merchandise collection is now available in our shop! From hoodies to mugs and stickers, there is something for everyone. Worldwide shipping is available and sizes XS-5XL. Up to $8 of proceeds from each purchase goes to The Ehlers-Danlos Society’s global mission. Shop here.
2026 Walk and Roll Sponsor Spotlight: Sodii
Huge thank you to Sodii for supporting our 2026 Walk and Roll Challenge this May and helping keep our community hydrated every step of the way. Their support plays a key role in bringing this challenge to life and improving the experience for everyone taking part. It’s partnerships like this that enable us to deliver engaging initiatives that truly bring our community together.
Thank you, Sodii, for being a part of this journey with us.
Be Part of the Movement
💡 Every action you take helps us get closer to our $100K goal—funding research, improving care, and supporting the EDS and HSD community.
🦓 Together, we dazzle. Together, we change lives.
May Awareness Fundraiser Spotlight
Throughout May, we’re featuring supporters who are raising funds and awareness for the EDS and HSD community through personal fundraising campaigns, events, and creative challenges.
Their efforts are helping drive research, education, advocacy, and support, while inspiring others to start fundraising too.
After spending nearly two decades searching for answers, London-based contemporary artist Milena Makani was finally diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS). Living with chronic pain and EDS, her abstract work explores resilience, emotion, and the complexities of the human experience through deeply introspective visual storytelling. During May Awareness, Milena is donating 50% of profits to support The Ehlers-Danlos Society’s research, education, advocacy, and patient support initiatives, helping inspire others still searching for answers.
United States:
As a 501c3 organization, your donation is a tax-deductible charitable contribution to the extent allowed by the law, EIN# 38-2813140. Certain states require written disclosures for nonprofit organizations soliciting contributions. Please click here for individual state disclosures.
United Kingdom:
As a registered charity in England and Wales (1180984), your donation is eligible for the Gift Aid scheme to the extent allowed by law. The Ehlers-Danlos Society’s Companies House Number is 10722868. To include Gift Aid in your donation please download, fill out, and return the gift aid form to [email protected].
