May is EDS and HSD Awareness Month!

EDS & HSD Awareness Month 2022

What is EDS and HSD Awareness Month?

Every May, people all over the world show their support for people living with and affected by the Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorders (HSD). Our shared mission is important throughout the year, but May is a time we all come together, share experiences, and highlight what is needed to progress change. 

Take part in the Acts of Awareness Challenge this May!

Help raise vital awareness, globally, by completing a challenge (or as many as you can) during the month of May. Every kilometer walked or rolled, every $/€/£ raised, every act of awareness helps us towards the goal of 150,000 global acts of awareness.

Read on for how to take part and how to earn limited-edition incentives!

The Acts of Awareness Challenges

Light up challenge

Social Media Challenge

Walk and roll challenge

EDS ECHO Challenge

Proclamation Challenge

Awareness Merchandise & Materials

Awareness Materials


Earn Limited-Edition May Incentives!

We are delighted to offer the following incentives to those who take part in the Acts of Awareness Challenges and help spread awareness of EDS and HSD: 

  • Complete 60 acts of awareness to receive a US$17 eVoucher for Redbubble to purchase our fabulous limited-edition May Awareness mug or notebook.
  • Complete 150 acts of awareness and receive a US$26 eVoucher for Redbubble to purchase our limited-edition May Awareness t-shirt.
  • Complete 350 acts of awareness to receive a US$43 eVoucher for Redbubble to purchase our limited-edition May Awareness hoodie or anything from our May range!

Only those taking part in May Awareness will have access to the exclusive Acts of Awareness merchandise range! Those who achieve over 350 Acts of Awareness will be sent a limited-edition May Awareness lapel pin, and be entered into a draw to win one of five Global Learning Conference event passes. 

Please note: Incentive prizes do not accrue as you move to the next tier of incentives. In order to qualify to claim incentive prizes, you must submit your Acts of Awareness by June 7, 2022. Acts of awareness submitted after this date will not qualify for incentive prizes. The eVouchers are for Redbubble, an online retailer where you can choose your limited edition item, your size, and color. Shipping is not included. 

Order Ehlers-Danlos Society Merchandise!

The Ehlers-Danlos Society uses The Network for Good platform to receive online donations and their details will appear on your credit card statement following a donation to our organization. Network for Good’s Donor Advised Fund is an accredited charity by the Better Business Bureau. At the current time we are unable to accept donations from persons located in Mississippi.