Every May, our global community comes together to raise awareness, share experiences, and drive progress for those living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
This year, our goal is to raise $100,000 in May—funding groundbreaking research, education for healthcare professionals, and critical support for those impacted worldwide. Let’s make an impact together. Whether you walk, roll, share your story, or fundraise, every act of awareness fuels change.
To thank you for your dedication, we’ve created fundraising reward tiers with exclusive prizes when you raise over $60!
Join the Movement. Make a Difference.
How can I get involved?
No matter where you are in the world, you can take part in Acts of Awareness—challenges designed to raise awareness and funds in creative, accessible ways.
🚶🏽♀️♿ Join the Walk and Roll Challenge – Move in a way that works for you, whether it’s walking, wheeling, cycling, or rolling 100 steps, 10 miles, or 100 miles in May.
📣 Raise Your Voice – Share your EDS or HSD journey on social media, educate others, or contact your local representatives to advocate for better care.
🏫 Get Your School or Workplace Involved – Organize an awareness event, a zebra dress-up day, or a group Walk and Roll Challenge to spread the word in your community.
🦓🧡 Join the Acts of Awareness Challenges – There’s something for everyone! Find the challenge that’s right for you below and start making a difference.
Order May Awareness Merchandise
May Awareness merchandise collection is now available in our shop! From hoodies to mugs and stickers, there is something for everyone. Worldwide shipping is available and sizes XS-5XL. Up to $8 of proceeds from each purchase goes to The Ehlers-Danlos Society’s global mission. Shop here.
Be Part of the Movement
💡 Every action you take helps us get closer to our $100K goal—funding research, improving care, and supporting the EDS and HSD community.
🦓 Together, we dazzle. Together, we change lives.
