
What is Project ECHO®
Project ECHO® addresses population health in a scalable way — moving knowledge instead of people via telementoring and collaborative care with the philosophy of we can ‘all teach, and all learn’.
The heart of the ECHO model is its hub-and-spoke knowledge-sharing networks, led by expert specialist teams. The ECHO model is not “telemedicine” where specialists assume the care of the patient; it is a guided model aimed at practice improvement, in which providers retain responsibility for patients, and gain increasing independence as skills, confidence, and self-efficacy. For more information about Project ECHO® visit echo.unm.edu
In April 2019, The Ehlers-Danlos Society started the EDS ECHO program with two hubs, one at Indiana University Health, Indianapolis, IN, USA, and the other at The Royal Society of Medicine, London, UK. Over time, our programs and courses have grown to be worldwide, supporting healthcare professionals across multiple disciplines and community advocates and leaders in EDS and HSD.
About EDS ECHO
EDS ECHO is a series of programs and courses for healthcare professionals across all disciplines who want to improve their ability to care for people with Ehlers-Danlos Syndromes (EDS), hypermobility spectrum disorders (HSD) and associated symptoms and conditions. Enhancing care for people with all types of EDS and HSD through case-based discussions, sharing knowledge, and expert updates is at the heart of what we do.
EDS ECHO also runs programs on advocacy and for community leaders and educators, exploring ways participants can better teach and support those living with EDS or HSD.
Participants in our programs are able to share their cases and questions in the sessions and are guided to further educational materials and support.
After taking part in a healthcare professional program, participants are invited to join us at any future EDS ECHO sessions and continue to take advantage of and support our ever-growing network of knowledgeable clinicians. We also help local and regional groups to start a program for the care of their patients, expanding the EDS ECHO network, bringing care closer to home.

EDS ECHO Programs & Courses
Since its inception, EDS ECHO has added several new programs to its portfolio. We continue to introduce new programs, courses, and virtual education meetings which we advertise on the Ehlers-Danlos Society Home Page, on social media, and to our registered healthcare professionals.
HEALTHCARE PROFESSIONALS
EDS ECHO Programs and Courses
for Healthcare Professionals
EDS & HSD COMMUNITY
EDS ECHO Programs and Courses
for the EDS & HSD Community
Program Registration
Click on the programs below to find out more information. Please check our ECHO home page, social media announcements, or subscribe to our EDS ECHO Newsletter for program updates.
For inquiries regarding EDS ECHO, please contact us at [email protected]