Project ECHO

Project ECHO®
The Ehlers-Danlos Society


Enhancing care for people with all types of Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorder (HSD) through case-based discussions, sharing knowledge, and expert updates.

EDS ECHO a program for healthcare professionals across all disciplines who want to improve their ability to care for people with EDS, HSD and associated symptoms and conditions.

Project ECHO addresses population health in a scalable way — moving knowledge instead of patients via telementoring and collaborative care.

The heart of the ECHO model™ is its hub-and-spoke knowledge-sharing networks, led by expert specialist teams. The ECHO model is not “telemedicine” where specialists assume the care of the patient; it is a guided model aimed at practice improvement, in which providers retain responsibility for patients, and gain increasing independence as skills, confidence, and self-efficacy grow.

Illustration of ECHO hub-and-spoke concept

For more about Project ECHO®


An Evolution in Medical Education and Care Delivery

In April 2019, The Ehlers-Danlos Society started the EDS ECHO program with two hubs, one at Indiana University Health, Indianapolis, IN, USA, and the other at The Royal Society of Medicine, London, UK. Over time, our aim is to open hubs all over the world.

One of our greatest assets is the International Consortium, a group of independent expert clinicians, scientists, and patients from across many specialties. Our medical professional members run the EDS ECHO program: a rolling program that covers the main aspects of EDS and HSD.

Participants are able to share their cases and questions in the sessions, and are guided to further educational materials and support. CME/CEU/CE/Nurses credits are available at no charge to participants on our professionals programs.

After taking part in the program, participants are invited to join us at any future EDS ECHO sessions. We will also help groups to start a program for the care of their patients, expanding the EDS ECHO network, and bringing care closer to home.


EDS ECHO Programs

Since its inception, EDS ECHO has added several new programs to its portfolio. We continue to introduce new programs and virtual education meetings which we advertise on the Society’s Home Page, on Social Media, and our registered healthcare professionals.

EDS ECHO Program News & Updates

 Updated: August 31, 2021

Please check back regularly to read news and updates from our EDS ECHO programs. We will announce when applications will open and close for our programs here, as well as other updates from our programs.

EDS ECHO Clinicians A (North America)The program is full for 2021. Applications for 2022 will open later this year.
EDS ECHO Clinicians B (Europe)The program is full for 2021. Applications for 2022 will open later this year.
EDS ECHO Clinicians Drop-in SessionsApplications stay open throughout the year.
EDS ECHO AdvocacyA small number of spaces have become available for the EDS ECHO Advocacy program (PP9) commencing on October 20th, 2021. If you would like to apply for a place on the program, please click here.
EDS ECHO AHP North AmericaApplications are currently open. Module 5 will commence in September 2021.
EDS ECHO AHP AustraliaThe program is full for 2021. Application for 2022 modules will open in October this year.
EDS ECHO UK & EURApplications are currently open. Module 5 will commence in October this year.
EDS ECHO Pediatrics North AmericaApplications for Module 2, commencing in October 2021, are now open.
EDS ECHO Pediatrics AustraliaThe program will re-start in 2022. Details will be announced in September 2021.
EDS ECHO vEDSProgram currently under revision with new format and applications opening soon.