Last Updated: 22 April 2026

Charitable Solicitation Disclosure Statement

Contributions are solicited on behalf of The Ehlers-Danos Society, a nonprofit organization located at 447 Broadway 2nd Fl #670, New York, New York, 10013. The purpose of this solicitation is to support research, education, and access for individuals affected by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). 

A copy of our latest financial report and additional information regarding our programs and activities is available upon request by completing the form on our Contact Us page.

Mailing Address Disclosure:
The headquarters of this organization is located at 447 Broadway 2nd Fl #670, New York, New York. Any mailing address provided in New York is that of a mail drop box located in that state and is not a staffed office of the organization. 

Unless otherwise stated, contributions are tax deductible to the extent permitted by law. 

STATE DISCLOSURES 

REGISTRATION IN A STATE DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THAT STATE. 

Florida: A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE, 1-800-HELP-FLA OR ONLINE AT WWW.FLORIDACONSUMERHELP.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. REGISTRATION NUMBER: CH15618 

Georgia: A full and fair description of the programs and a financial statement summary is available upon request. 

Maryland: A copy of the current financial statement is available by writing to us at the address listed above or by contacting the Maryland Secretary of State. 

Mississippi: “The official registration and financial information of The Ehlers-Danlos Society may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167. Registration by the Secretary of State does not imply endorsement.” 

New Jersey: Information filed with the attorney general concerning this charitable solicitation and the percentage of contributions received by the charity during the last reporting period that were dedicated to the charitable purpose may be obtained from the attorney general of the state of new jersey by calling (973) 504-6215 and is available online. Registration with the attorney general does not imply endorsement. 

New York: A copy of the latest annual report may be obtained from the organization or from the New York State Attorney General’s Charities Bureau. Information is also available on the Attorney General’s website. 

North Carolina: FINANCIAL INFORMATION ABOUT THIS ORGANIZATION AND A COPY OF ITS LICENSE ARE AVAILABLE FROM THE STATE SOLICITATION LICENSING BRANCH AT 1-888-830-4989. THE LICENSE IS NOT AN ENDORSEMENT BY THE STATE. 

Pennsylvania: “The official registration and financial information of The Ehlers-Danlos Society may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement.” 

Virginia: A financial statement is available from the Virginia Department of Agriculture and Consumer Services upon request. 

Washington: Financial disclosure information is available from the Secretary of State at 1-800-332-4483. 

West Virginia: West Virginia residents may obtain a summary of the registration and financial documents from the Secretary of State. Registration does not imply endorsement. 

Additional State Notices:
Residents of certain states may obtain financial and/or licensing information from their respective state agencies. 

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