2026 Global Learning Conference: Connecting the Stripes

The Ehlers-Danlos Society invites you to join us July 24-26, 2026 in Dallas, Texas (USA) and Online for the 2026 Global Learning Conference – a hybrid event designed for individuals and families impacted by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), as well as healthcare professionals and caregivers.

Listening Labs: The Lived Experience

For many people living with Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD), diagnosis is only the start. The next challenge is navigating care, being heard, finding support, and accessing joined-up services.

That is why we are inviting our community to take part in a series of Listening Labs as part of the development of a new Model of Care for EDS and HSD. These structured virtual sessions are a chance to share your real experiences of seeking care, especially in primary care, where most journeys begin. Your insights will help identify what is not working, what needs to change, and what better care should look like in practice.

What is EDS?

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

What is HSD?

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.