I am an...
…looking for advice and information on EDS or HSD, support groups, and the helpline.
The EDS ECHO summit on Emergency Care is a virtual event focused on addressing the unique challenges and considerations in providing emergency care for individuals with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). The sessions cover a wide range of topics to enhance awareness, preparedness, and effective management during emergencies.
The Ehlers-Danlos Society is delighted to welcome you to register for our 2024 Global Learning Conference in Philadelphia, Pennsylvania, USA! We will be hosting this exciting hybrid event, both in-person and virtually. Join individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to five days of learning, collaboration, and networking.
The conference theme is “EDS and HSD: From Head to Toe” and will feature presentations, case studies, and panel discussions led by experts on the management of symptoms and comorbidities from head to toe in EDS and HSD. The event is suitable for community members and their friends and families, as well as healthcare professionals.
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.
Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.
Give today to make a difference in the lives of people living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders.