We're doubling donations this holiday season!

We’re delighted to announce that a donor whose family understands the challenges of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), will match your donations. Make your tax-deductible gift today.

Your donation will have twice the impact!

2025 Global Learning Conference: Brisbane, Australia!

Registration is now open for our 2025 Global Learning Conference in Brisbane, Australia! We will be hosting this exciting hybrid event, both in-person and virtually. Join individual and families with EDS and HSD, and healthcare professionals, for up to three days of learning, collaboration, and networking. 

What is EDS?

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

What is HSD?

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.