May is EDS and HSD Awareness Month!

No matter where you are in the world, you can take part in Acts of Awareness this May—challenges designed to raise awareness and funds in creative, accessible ways. Every action you take helps us get closer to our $100,000 goal—funding research, improving care, and supporting the EDS and HSD community.

International Scientific Symposium 2025 - Toronto, Canada!

Last call to healthcare professionals in the field of EDS and HSD! Don’t miss the opportunity to submit your late-breaking abstracts for consideration for inclusion in the upcoming International Scientific Symposium.

Submissions are now open and will close on May 30, 2025. Full details on submission guidelines and abstract categories can be found via the button below. We look forward to reviewing your contributions.

What is EDS?

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

What is HSD?

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.