EDS ECHO Summit: Diet & Nutrition

The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Diet and Nutrition, a virtual event held on November 2, 2024. This event is suitable for community members, their friends, families, and caregivers, as well as healthcare professionals.  

This event will feature presentations, case studies, and panel discussions around the latest management and care strategies, featuring presentations on the following topics: 

  • Allergy vs Intolerance 
  • Diversifying Nutritional Intake: Non-oral/Tube Feeding 
  • Is There an EDS & HSD Diet? 
  • Optimizing Diet and Nutrition for Neurodivergent Individuals 
  • The Clinical Application of Supplementation 

What is EDS?

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.

What is HSD?

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.

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