Raise Awareness!

Raise awareness with printable brochures, leaflets, and posters! Find resources to print on EDS, HSD, The Ehlers-Danlos Society, and EDS ECHO, a program for health professionals to learn how to better support and care for their patients with these conditions, here. 

Why do we use the zebra in our logo, and why is our dazzling community #ZebraStrong? ⁠Learn more! 

Add a Social Media Frame to your profile picture this May to raise awareness and encourage your friends and family to learn more about EDS and HSD!

Simply select a frame from the choices [COMING SOON!], and click on the link to be taken to Twibbonize. From there you can upload your photo from your camera roll on your smartphone, and then download the framed picture for your social media channels. 

Use these easy templates to ask friends and family to support your #myEDSchallenge | #myHSDchallenge and to help you reach your awareness goals! 

Just copy/paste the text here into your email or to social media, and then fill in the blanks with information about your challenge and your story.  

Vascular Ehlers-Danlos syndrome (vEDS) is a dominantly inherited, genetic connective tissue disorder. vEDS is particularly serious because of the risk for spontaneous arterial or organ rupture. Potentially fatal effects include arterial aneurysm, dissection, and rupture; bowel rupture; and rupture of the uterus when pregnant. Life span is often affected.

This awareness video hopes to highlight some of the experiences of the community living with vEDS, the impact on their families, the importance of education and research, and hopes for the future. There is no better way of hearing what it is like to live with vEDS, than from individuals who have vEDS themselves. Please share this and raise awareness of vEDS.

#myEDSchallenge  #myHSDchallenge

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