Help shine a light on EDS and HSD this May! Contact your local buildings of interest and submit a request to have the building lit up for awareness. The more national and local buildings and monuments lit up, the further the global impact for awareness.
Request orange lights for EDS and HSD awareness, or go red for vascular EDS (vEDS) awareness for #REDS4VEDS Day!
Check the status of your local or national building or monument below – if it isn’t listed, contact them to LIGHT IT UP!
There are many different venues that can be lit up for awareness, from malls and shopping centers to statues and monuments, and from town halls to schools. There is often limited availability and so reach and contact your chosen venue as early as possible to try and secure a date.
Each venue will have its own process for requesting it to be lit up, so try and reach out by telephone, email, or social media to speak with a manager or to find out the process. Scroll down for our handy email templates! Many venues will have online applications you can submit.
We encourage you to request:
Complete this form to tell us your Light it Up request has been submitted! We would love to follow the progress of your application and hope to see awareness being spread through the building’s social media channels.
Be sure to take photographs if you are attending the building or monument light up on the confirmed night! Share these on social media with the hashtags #MyEDSChallenge, #MyHSDChallenge, and on May 15, #REDS4VEDS.
SUBJECT
Shine a light on EDS and HSD
EMAIL BODY
Dear [ENTER NAME],
My name is [ENTER NAME]. I live in [ENTER CITY, STATE, COUNTRY].
GIVE 1-2 SENTENCES ABOUT YOUR DIAGNOSIS/CURRENT SITUATION/CHALLENGES OR YOUR FAMILY MEMBERS’.
May is Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month, a month dedicated to raising awareness for people worldwide with these complex, multisystemic conditions.
Can [ENTER BUILDING / LANDMARK NAME] be lit up in orange for EDS and HSD Awareness Month on May 4, 2026?
I look forward to hearing from you.
Kind regards,
[ENTER NAME]
SUBJECT
Shine a light on vEDS
EMAIL BODY
Dear [ENTER NAME],
My name is [ENTER NAME]. I live in [ENTER CITY, STATE, COUNTRY].
GIVE 1-2 SENTENCES ABOUT YOUR DIAGNOSIS/CURRENT SITUATION/CHALLENGES OR YOUR FAMILY MEMBER’S.
May is Ehlers-Danlos Syndromes Awareness Month, a month dedicated to raising awareness for people worldwide with these complex, multisystemic conditions.
May 15 is #REDS4VEDS Day, a global awareness day, wearing red for vascular Ehlers-Danlos syndrome (vEDS): a rare, life-limiting genetic disorder.
Can [ENTER BUILDING / LANDMARK NAME] be lit up in red for #REDS4VEDS Day on May 16, 2025?
Kind regards,
[ENTER NAME]
Stay tuned, we’ll be adding requests here for May 2026!
