May Awareness – Light it Up!
Help shine a light on EDS and HSD this May! Contact your local buildings of interest and submit a request to have the building lit up for awareness. The more national and local buildings and monuments lit up, the further the global impact for awareness.
Request orange lights for EDS and HSD awareness, or go red for vascular EDS (vEDS) awareness for #REDS4VEDS Day!
How do I take part?
Check the status of your local or national building or monument below – if it isn’t listed, contact them to LIGHT IT UP!
There are many different venues that can be lit up for awareness, from malls and shopping centers to statues and monuments, and from town halls to schools. There is often limited availability and so reach and contact your chosen venue as early as possible to try and secure a date.
Each venue will have its own process for requesting it to be lit up, so try and reach out by telephone, email, or social media to speak with a manager or to find out the process. Scroll down for our handy email templates! Many venues will have online applications you can submit.
What date should I request for them to Light it Up?
We encourage you to request:
- May 4, 2024, as a day to Light it Up in orange
- May 17, 2024, in red for #REDS4VEDS Day for awareness of vascular Ehlers-Danlos syndrome (vEDS)
- Alternatively, any day throughout May in orange will help with awareness!
Let us know!
Complete this form to tell us your Light it Up request has been submitted! We would love to follow the progress of your application and hope to see awareness being spread through the building’s social media channels.
On the night
Be sure to take photographs if you are attending the building or monument light up on the confirmed night! Share these on social media with the hashtags #MyEDSChallenge, #MyHSDChallenge, and on May 17, #REDS4VEDS.
Australia
- Canberra, Telstra Tower (May 1)
- Canberra, Black Mountain Tower (May 4)
- Pedbury, Western Australia, Joondalup Bridge (May 4)
- Perth, Matagaruo Bridge (May 4)
- The FigTree Lights (May 19)
Canada
- City Hall , St. John’s, Newfoundland and Labrador (May 30)
- Ontario, Waterluminate – King St Lights (May 4)
- Port Coquitlam, BC, City Lights (May 4)
- Toronto, CN Tower (May 4)
Italy
- Town Hall, Trecate, Piedmont, Italy (May 4)
Netherlands
- Wereldmuseum (World Museum) (May 1)
- Hofpleinfontein (Main Fountain in city centre) (May 1)
- P+R Noorderhelling (Park and Ride) (May 1)
Spain
- Cuenca, Torre mangana (May 4)
- Madrid, Ayuntamiento, Torrejón de Ardoz (May 4)
- Madrid, Consistorio, Torrejon De Ardoz (May 17)
- Getafe, Ayuntamiento de Getafe (May 4 and 17)
- Alcalá de Henares, Centro Historico (May 15)
- Albacete, Museo municipal, Museo Cuchillería, Casa consistorial (May 15)
- Cáceres, Ayuntamiento de Cáceres (May 15)
- Madrid, San Fernando de Henares, Estatua Fernando VI (May 15)
- Madrid, S.Sebastian de los Reyes, El Caseron (May 15)
- Madrid, Fuente Cibeles (May 15)
- Mérida, Ayuntamiento (May 24 and 25)
- Toledo, Puente y puerta de Alcántara, Baño de la cava (May 17)
Sweden
- Skåne, Kristianstad’s Theatre, Kristianstad, Skåne, Sweden (May 2)
Taiwan
- Taipei 101, Taipei (May 4)
United Kingdom
- Bracknell, Time Square, Bracknell, Berkshire (May 4)
- Hastings, Bottle Alley
- Northampton, National Lift Tower (May 3)
- Plymouth, Smeatons Tower (May 4)
- Surrey, Camberley Theatre (May 4)
- Surrey, Guildford Cathedral (May 4)
- Surrey, Guildford Castle (May 4)
- Woking, Victoria Place (May 4)
- Woking, Wolsey Place (May 4)
United States of America
- Alabama, RSA Tower (May 4)
- Arkansas, Ellis Library Tower at Arkansas State University (May 4)
- California, San Diego Convention Center Sails (May 4)
- California, UC Berkley Buildings (May 4)
- California, US Bank Tower (May 4)
- California, Salesforce Tower (May 4)
- Florida, Bank of America (May 5)
- Georgia, The King and Queen Buildings, Atlanta (May 5)
- Indiana, The Old Courthouse (May 4)
- Maryland, Baltimore City Hall (May 2 and 15)
- Maryland, Maryland State House (May 4)
- Missouri, The Arch (May 4)
- New Jersey, Northampton Street Toll-Supported Bridge (Easton-Phillipsburg free bridge) (May 4)
- New Jersey, Trenton Makes The World Takes Sign (Lower Trenton Toll-Supported Bridge) (May 4)
- New York, Rochester City Hall (May 1)
- New York, The Metropolitan (May 1)
- New York, One East Avenue (May 1)
- New York, Tower 280 (May 1)
- New York, The Legacy Tower (May 1)
- New York, 3 City Center (May 1)
- New York, Empire State Building (May 4)
- North Carolina, Cary Arts Center, Cary NC (May 11)
- Ohio, Tower City (May 4)
- Ohio, Terminal Tower (May 11)
- Oregon, Moda Center (May 4)
- Oregon, Oregon Convention Center (May 4)
- Oregon, The Ross Ragland Theater (May 4)
- Pennsylvania, Lincoln Financial Field (Eagles Stadium) (May 4)
- South Carolina, Myrtle Beach Skywheel, Myrtle Beach, SC Horry County (May 4)
- Tennessee, Clarksville Greenway, Clarksville (May 4)
- Tennessee, Clarksville Marina , Clarksville (May 4)
- Tennessee, Customs House Museum and Cultural Center, Clarksville (May 4)
- Tennessee, Frank Sutton Statue, Clarksville (May 4)
- Tennessee, Wilma Rudolph Memorial Statue, Clarksville (May 4)
- Washington, Seattle Space Needle (May 4)
LIGHTING REQUEST EMAIL TEMPLATE – EDS AND HSD
SUBJECT
Shine a light on EDS and HSD
EMAIL BODY
Dear [ENTER NAME],
My name is [ENTER NAME]. I live in [ENTER CITY, STATE, COUNTRY].
GIVE 1-2 SENTENCES ABOUT YOUR DIAGNOSIS/CURRENT SITUATION/CHALLENGES OR YOUR FAMILY MEMBERS’.
May is Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month, a month dedicated to raising awareness for people worldwide with these complex, multisystemic conditions.
Can [ENTER BUILDING / LANDMARK NAME] be lit up in orange for EDS and HSD Awareness Month on May 4, 2024?
I look forward to hearing from you.
Kind regards,
[ENTER NAME]
LIGHTING REQUEST EMAIL TEMPLATE – vEDS
SUBJECT
Shine a light on vEDS
EMAIL BODY
Dear [ENTER NAME],
My name is [ENTER NAME]. I live in [ENTER CITY, STATE, COUNTRY].
GIVE 1-2 SENTENCES ABOUT YOUR DIAGNOSIS/CURRENT SITUATION/CHALLENGES OR YOUR FAMILY MEMBER’S.
May is Ehlers-Danlos Syndromes Awareness Month, a month dedicated to raising awareness for people worldwide with these complex, multisystemic conditions.
May 17 is #REDS4VEDS Day, a global awareness day, wearing red for vascular Ehlers-Danlos syndrome (vEDS): a rare, life-limiting genetic disorder.
Can [ENTER BUILDING / LANDMARK NAME] be lit up in red for #REDS4VEDS Day on May 17, 2024?
Kind regards,
[ENTER NAME]
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