May Awareness – Light it Up!

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Help shine a light on EDS and HSD this May! Contact your local buildings of interest and submit a request to have the building lit up for awareness. The more national and local buildings and monuments lit up, the further the global impact for awareness.

Request black and white lights for zebra-strong awareness, or go red for vascular EDS (vEDS) awareness for #REDS4VEDS Day!

How do I take part?

Check the status of your local or national building or monument below – if it isn’t listed, contact them to LIGHT IT UP!

There are many different venues that can be lit up for awareness, from malls and shopping centers to statues and monuments, and from town halls to schools. There is often limited availability and so reach and contact your chosen venue as early as possible to try and secure a date.

Each venue will have its own process for requesting it to be lit up, so try and reach out by telephone, email, or social media to speak with a manager or to find out the process. Scroll down for our handy email templates! Many venues will have online applications you can submit.

What date should I request for them to Light it Up?

We encourage you to request:

  • May 4, 2023, as a day to Light it Up in black and white
  • May 19, 2023, in red for #REDS4VEDS Day for awareness of vascular Ehlers-Danlos syndrome (vEDS)
  • Alternatively, any day throughout May in black and white will help with awareness!

Let us know!

Complete this form to tell us your Light it Up request has been submitted! We would love to follow the progress of your application and hope to see awareness being spread through the building’s social media channels.

On the night

Be sure to take photographs if you are attending the building or monument light up on the confirmed night! Share these on social media with the hashtags #MyEDSChallenge, #MyHSDChallenge, and on May 19, #REDS4VEDS.

LIGHTING REQUEST EMAIL TEMPLATE – EDS AND HSD

SUBJECT

Shine a light on EDS and HSD


EMAIL BODY

Dear [ENTER NAME],

My name is [ENTER NAME]. I live in [ENTER CITY, STATE, COUNTRY].

GIVE 1-2 SENTENCES ABOUT YOUR DIAGNOSIS/CURRENT SITUATION/CHALLENGES OR YOUR FAMILY MEMBER’S.

May is Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month, a month dedicated to raising awareness for people living all around the world with these complex, multisystemic conditions.

Can [ENTER BUILDING / LANDMARK NAME] be lit up for EDS and HSD Awareness Month on May 4, 2023? The colors are black and white to represent the zebra, our symbol for awareness.

I look forward to hearing from you.

Kind regards,
[ENTER NAME]

LIGHTING REQUEST EMAIL TEMPLATE – vEDS

SUBJECT

Shine a light on vEDS


EMAIL BODY

Dear [ENTER NAME],

My name is [ENTER NAME]. I live in [ENTER CITY, STATE, COUNTRY].

GIVE 1-2 SENTENCES ABOUT YOUR DIAGNOSIS/CURRENT SITUATION/CHALLENGES OR YOUR FAMILY MEMBER’S.

May is Ehlers-Danlos Syndromes Awareness Month, a month dedicated to raising awareness for people living all around the world with these complex, multisystemic conditions.

May 19 is #REDS4VEDS Day, a global day of awareness, wearing red for the vascular type of Ehlers-Danlos syndrome (vEDS): a rare, life-limiting genetic disorder.

Can [ENTER BUILDING / LANDMARK NAME] be lit up for #REDS4VEDS Day on May 19, 2023? The color is red.

I look forward to hearing from you.

Kind regards,
[ENTER NAME]

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