Reports to: Chief Operations Officer

Location: US / UK, Remote Based

Working Hours: Full-Time, 9am-5pm (EST/BST)

Contract: Fixed-Term until December 31, 2027

Salary: £50,000 / $69,500 (dependent on location)

Revised: September 2025

Organization Overview

The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Overview of Responsibilities

The Road to 2026 (RT26) Project Manager will own and drive the operational delivery of all organizational activities connected to the RT26 initiative. This includes both the preparation required to position the Society for success and the dissemination work needed to maximize global impact.

This is a high-accountability role responsible for translating strategic priorities into clear project plans, aligning cross-departmental resources, and ensuring operational deliverables are completed on time, within budget, and to standard. The postholder will proactively manage risks, capacity, and interdependencies, while embedding structure, clarity, and accountability across all teams.

Acting as the central point of coordination, the Project Manager will ensure that RT26 is operationally delivered successfully and sustainably, providing the organization with the infrastructure, systems, and processes needed to achieve lasting impact.

Key Responsibilities/Essential Functions

This role has five (5) core areas of ownership. The responsibilities involved include, but are not limited to:

Project Leadership & Accountability

• Own and drive the full lifecycle of the Road to 2026 (RT26) initiative, ensuring delivery on time, within budget, and to a high standard.
• Hold accountability for aligning cross-departmental workstreams (research, operations, communications, fundraising) to RT26 milestones.
• Anticipate risks, resource gaps, and delivery challenges, and lead solutions proactively.

Strategic Coordination

• Translate high-level strategy into detailed, actionable project plans with clear responsibilities and deadlines.
• Ensure consistent application of planning tools and decision-making frameworks across all RT26 activities.
• Monitor interdependencies between programs and keep leadership fully briefed on progress and emerging issues.

Stakeholder Engagement & Communication

• Act as the central point of accountability for internal and external stakeholders, ensuring clarity on goals, expectations, and outcomes.
• Prepare authoritative progress reports, dashboards, and presentations for leadership, the Board, and funders.
• Represent RT26 confidently in meetings, driving decisions and ensuring follow-through.

Capacity Building & Delivery Support

• Strengthen team capability by embedding best practices in project planning, resource mapping, and evaluation.
• Ensure staff have the tools, processes, and clarity needed to deliver their contributions effectively.
• Coach and challenge colleagues where needed to maintain high standards of delivery and accountability.

Impact & Reporting

• Track and evidence the impact of RT26 through robust data, financial monitoring, and outcome measurement.
• Translate findings into actionable insights that inform leadership decision-making and strengthen organizational learning.
• Ensure RT26 contributes directly to the Society’s long-term sustainability and positioning as a global leader.

Work Environment

Under normal conditions, this role is a fully remote position, working from home. However, due to the international nature of the Society’s work, staff may be required to travel to company events, meetings, and conferences as well as some weekend work.

Requirements

Experience & Expertise

• Demonstrated ability to lead and deliver complex, multi-year, multi-stakeholder projects from initiation through to completion.
• Proven track record of holding direct accountability for timelines, budgets, risks, and reporting at organizational or program level.
• Background in managing projects in a nonprofit, research, healthcare, or global program context, ideally in complex or regulated environments.
• Experience building and overseeing operational infrastructure: project planning tools, reporting systems, governance frameworks, and cross-department coordination.
• Evidence of success in projects where strategic alignment, funding, and impact measurement were critical to outcomes.

Skills & Competencies

• Confident leader who can drive accountability across teams and challenge constructively when standards are not met.
• Skilled at turning strategy into execution: translating vision into clear deliverables, timelines, and responsibilities.
• Exceptional communicator, able to brief and report clearly to senior leadership, boards, and funders.
• Strong stakeholder management, facilitation, and negotiation skills; comfortable navigating complex or sensitive decisions.
• Highly organized and detail-focused, with strong capacity for risk assessment and problem-solving.
• Proficient in Microsoft Office (Outlook, Word, Excel, PowerPoint) and collaboration tools such as Monday.com, Zoom, and Slack.
• Comfortable working independently in a remote, global, fast-paced organization.

Work Environment & Travel Requirements

• Fully remote; must be based in the US or UK and eligible to work without sponsorship.
• Reliable high-speed internet for video calls and cloud tools.
• Comfortable collaborating across time zones; occasional early/late meetings.
• Occasional evenings/weekends for events and outreach.
• Travel to one in-person, UK based, staff retreats annually, and additional events as required.

Preferred Experience & Qualifications

• Recognized project management qualification (e.g., PMP, PRINCE2, AgilePM, or equivalent) – highly desirable.
• Experience in governance reporting or managing projects tied to major publications.
• Familiarity with data privacy frameworks (GDPR/HIPAA); training provided.

Diversity Statement  

The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. – providing care, access, research and education in all that we do. We are a global, multicultural organization, as such we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.

Reports to: Research Data & Access Director

Location: USA or UK, Remote Based

Working Hours: Full-Time, 9-5 EST/GMT

Contract: Fixed-Term Contract (12 Months)

Salary: $35,000 / £26,000 per annum (dependent on location)

Revised: March, 2025

Organization Overview

The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Overview of Responsibilities

The CORE Coordinator provides essential administrative and coordination support to the research team, managing communications, scheduling, documentation, and stakeholder engagement. The position manages member engagement and communication, oversees the application and review process, and maintains accurate records in systems such as REDCap and Monday.com. It plays a key role in facilitating multi-site collaborations, relationship management, and ensuring governance and compliance The role also assists with research activities, registry integration, and event coordination, including the CORE Annual Meeting and member meet-ups. This individual ensures that all operations align with organizational standards for quality, confidentiality, and compliance (GDPR and HIPAA).

Key Responsibilities/Essential Functions

This role has 3 areas of ownership, the responsibilities involved include, but are not limited to:

CORE Network of Excellence Program Administration

• Engage with CORE Network members to assist with program activities, answer questions, and resolve issues, via platforms such as email, phone, and Slack
• Maintain the CORE Network roster, ensuring eligibility of members and working across teams within the Society to provide a seamless process
• Facilitate all aspects of the CORE membership application process, including direct applicant correspondence and coordination across Society teams.
• Organize applicant materials for approval by the independent CORE Review Committee
• Assist the Research Data & Access Director with research activities within the CORE Network
• Collaborate with the Registry Coordinator in managing CORE Network research recruitment activities, such as CORE utilization of the 3rd Party Access process or recruitment activities into the Society’s Global Registry and Global Biobank programs
• Assist with all aspects of hosting the CORE Network Annual Meeting & CORE Meet-Ups, including event correspondence, registration, speaker assistance and post-event materials.
• Complete data entry and quality control tasks on REDCap and/or Monday.com

Governance and Multisite Coordination

• Coordinate administrative oversight of multi-site agreements and approvals, such as non-disclosure, data sharing agreements and IRB applications
• Track important program milestones and deadlines, ensuring response from CORE Network members and external stakeholders

Department Administration

• Provide administrative support to the research team, such as coordinating meetings, materials, taking minutes and drafting and distributing agendas and actions.
• Undertake daily administrative tasks to ensure coordination of the research team’s activities, ensuring use of relevant governance frameworks.
• Contribute to the Research Department’s commitment to all areas of work carried out within the research department maintaining GDPR and HIPAA compliance.
• Provide day-to-day management of shared Society mailboxes and phone line, escalating issues to team leads as needed.
• Ensure accurate and timely records are maintained within REDCap & Monday.com. Maintaining detailed, up-to-date records.

Work Environment

Under normal conditions, this role is a fully remote position, working from home. However, due to the international nature of the Society’s work, staff may be required to travel to company events, meetings, and conferences as well as some weekend work.

Requirements

• Proven administrative experience in a cross-functional environment, preferably within research/care delivery and/or a nonprofit environment.
• Experience with handling confidential information.
• Experience with REDCap
• Strong attention to detail
• Excellent communication skills, with the ability to converse across a range of stakeholders.
• Knowledge of GDPR and HIPAA regulations is preferred, and training will be provided.
• Must be eligible to work in the US/UK without sponsorship.
• Must be able to work with colleagues and stakeholders across different time zones globally, which may occasionally include early morning or late evening meetings.
• Proficient in using Microsoft Office applications (Outlook, Word, Excel, PowerPoint) as well as Monday.com, Zoho Voice, Zoom & Teams.
• The ability to work in a virtual team setting and work independently.
• Ability to occasionally work evenings and weekends.
• Stable internet connection required for video calls & cloud-based services as this is a fully remote role.
• Travel to and attend our in-person staff retreats (UK & US based).
• Travel to and attend our in-person annual Global Learning Conference, and other events as required from time to time.

Preferred Skills

• Experience coordinating multisite programs/studies and/or international stakeholder management
• In addition to English, an intermediate or higher proficiency in another language
• Qualitative analysis experience using software such as NVivo
• An interest in EDS/HSD or rare disease would be beneficial

Diversity Statement  

The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. – providing care, access, research and education in all that we do. We are a global, multicultural organization, as such we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.

Reporting to: Creative and Digital Communication Director

Location: Remote (UK based)

Contract: 40 hours per week, Fixed Term Contract until December 2026 (12 months)

Salary: £26,000 per annum

Revised: November 2025

Organization Overview

The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Overview of Responsibilities

The Creative Artworker is responsible for producing high-quality artwork across a wide range of digital and print projects, ensuring brand consistency across fundraising and awareness campaigns, social media, program and event materials.

In addition to core artworking duties—such as designing event agenda layouts, speaker graphics, and PowerPoint presentations—you’ll have the opportunity to contribute creatively by developing ideas, mock-ups, and final assets for new initiatives and sub-brands. This role offers an exciting chance to bring fresh energy and precision to a variety of projects that span the organization’s annual calendar.

Key Responsibilities/Essential Functions

This role has three (3) core areas of ownership, the responsibilities involved include, but are not limited to:

Creative Artwork

• Translate project briefs into visually compelling, accurate, and creative materials that align with brand standards and objectives.
• Contribute to the design and development of the organization’s digital marketing platforms, including the website and social media channels.
• Collaborate with the Design & Communications department, as well as the wider team, on projects of all scales—ensuring all outputs are purposeful, high-quality, and fit for their intended use.
• Work collaboratively within the design team to complete briefs efficiently, supporting colleagues and managing shared workloads, particularly during busy event periods.
• Respond to day-to-day design requests submitted through the graphics ticketing system, such as creating internal and external presentation materials and other supporting assets.

Project Focus

• Take ownership of graphic content for assigned programs and projects, ensuring deliverables meet both creative and strategic goals.
• Maintain and apply brand guidelines to uphold visual consistency and cohesion across all materials.
• Develop and implement creative concepts that reflect the organization’s mission and help strengthen and differentiate its visual presence.
• Manage projects from concept through delivery, ensuring design excellence, attention to detail, and timely completion.

Departmental Processes

• Work closely with the Creative & Digital Communications Director to ensure all projects are delivered on schedule, within scope, and to the highest standard.
• Support structured workflows and briefing processes through the ticketing system to optimize design production and project management.
• Respond promptly and clearly to design requests, maintaining effective communication and alignment with project objectives.
• Foster a collaborative and creative team culture, contributing to a consistent standard of excellence across all visual output.

Work Environment

Under normal conditions, this role is a fully remote position, working from home. However, due to the international nature of the Society’s work, staff may require regular travel to company events, meetings, and conferences as well as some weekend work.

Requirements

Education & Knowledge

• Bachelor’s degree in graphic design, motion graphics, or a related field, or an up-to-date portfolio showcasing relevant skills.
• Strong proficiency in Adobe Creative Suite (Photoshop, Illustrator, InDesign).
• Proficiency in Microsoft Office Suite (Outlook, Word, Excel, PowerPoint).
• Proven experience of working in a creative art working/design position.
• Mac literate / a Mac user.

Communication & Interpersonal Skills

• Excellent planning, organizational, and multitasking abilities, with the capacity to prioritize tasks and meet tight deadlines.
• An eye for detail, accuracy, and consistency.
• The ability to work in a virtual team setting and work independently.
• A conceptual thinker who approaches work logically and systematically.
• Proven ability to take ownership of projects, from brief to final delivery.
• Comfortable working in a fast-paced environment with quick turnarounds.
• Strong interpersonal skills; a collaborative, team-oriented mindset.
• Be a collaborative team player with excellent interpersonal/communication skills.
• Interest in Ehlers-Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) is a plus but not required.

Workstyle & Flexibility

• Outstanding time management and organizational skills.
• Flexibility to collaborate across global time zones.
• Willingness to occasionally work evenings or weekends as required.

Work Environment and Travel Requirements

• Eligible to work in the UK without sponsorship.
• Reliable internet connection for remote work, video calls, and cloud-based collaboration.
• Ability to attend one in-person retreat annually in the UK.
• Willingness to travel to other in-person meetings and events as needed

Diversity Statement 

The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. – providing care, access, research and education in all that we do. We are a global, multicultural organization, as such we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.

Reports to: Creative and Digital Communication Director

Location: UK (Remote)

Working Hours: Full-Time, 40 hours per week, 9AM-5PM GMT

Contract: Fixed-Term (12 months with annual review)

Salary: £29,000 per annum

Revised: October 2025

Organization Overview

The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Overview of Responsibilities

The Ehlers-Danlos Society is seeking a creative, detail-oriented Graphic & Motion Designer with strong skills in motion design, graphic design, and video production. This role is central to the visual storytelling behind our educational offerings, particularly our Massive Open Online Courses (MOOCs), as well as our campaigns, events, and digital engagement efforts.

You will conceptualize and produce interactive learning materials, animations, videos, and compelling static designs that communicate complex information in accessible, audience-friendly formats. This position requires a hybrid creative mindset—balancing educational design with digital marketing creativity—and a strong understanding of current visual trends, accessibility standards, and brand consistency.

Key Responsibilities/Essential Functions

This role has four (4) core areas of ownership, the responsibilities involved include, but are not limited to:

Graphic, Motion, and Video Design

• Transform creative briefs into visually compelling designs, videos, and motion graphics aligned with strategic goals and brand identity.
• Produce high-quality, print-ready, and digital content, including motion graphics, video, and static assets for campaigns, MOOCs, and social media.
• Oversee the capture, editing, and production of original video content, including event footage and interview-style content.
• Create short, engaging animations and explainers to support learning and promotional content.
• Ensure all content adheres to accessibility standards and WCAG guidelines.

Interactive Learning & MOOC Support

• Design interactive learning tools (slide decks, PDFs, animated video explainers) optimized for use across digital learning platforms.
• Collaborate with subject matter experts to visually interpret complex scientific or medical topics.
• Create supporting web and multimedia content for MOOCs to drive engagement and learner retention.

Campaigns, Events, and Branding

• Take ownership of the visual identity for events, educational programs, and public awareness campaigns.
• Develop cohesive visual systems for assigned projects and maintain adherence to branding guidelines.
• Design visual assets for cross-platform use: emails, event signage, presentations, social graphics, and promotional items.
• Capture and edit event footage to support storytelling and digital campaigns (occasional travel may be required).

Creative Collaboration & Workflow

• Work closely with the Design & Communications team to ensure that all materials meet high standards and reflect our tone and mission.
• Contribute to campaign planning, brainstorming sessions, and creative strategy discussions.
• Manage workload through the design ticketing system and deliver multiple concurrent projects on time, especially during peak activity periods.
• Regularly contribute fresh ideas that elevate our creative approach and differentiate our visual presence.

Work Environment

This is a fully remote position. However, due to the international nature of the Society’s work, occasional travel to company events, meetings, and conferences may be required.

Requirements

Education & Knowledge

• Bachelor’s degree in graphic design or a related field, or an up-to-date portfolio demonstrating relevant skills.
• Proficient in Adobe Creative Cloud (Illustrator, InDesign, Photoshop, After Effects, Premiere Pro).
• Strong understanding of motion design, video production, and storytelling through animation.
• Experience designing accessible content (e.g., alt text, captions, screen reader compatibility).
• Excellent sense of typography, layout, and colour theory.
• Familiarity with social and digital platform trends (YouTube, TikTok, Instagram, etc.).
• Experience in a creative design or artwork production role, with a keen eye for detail, accuracy, and consistency.
• Communication & Interpersonal Skills
• Confident in managing projects end-to-end, from concept through to production and delivery.
• Conceptual thinker with a logical, systematic approach to work.
• Ability to take full ownership of projects from initial briefing to final presentation.
• Comfortable working in a fast-paced, dynamic environment with quick turnaround times.

Work Environment and Travel Requirements

• Must be eligible to work in the UK without sponsorship.
• Ability to work independently in a remote team setting.
• Reliable internet connection for remote work, video calls, and cloud-based collaboration.
• Ability to attend one in-person retreat annually (UK).
• Willingness to travel to other in-person meetings and events as required.
• Willingness to occasionally work evenings or weekends.

Diversity Statement  

The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. – providing care, access, research and education in all that we do. We are a global, multicultural organization, as such we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.

Reports to: Creative and Digital Communication Director

Location: Remote (UK based)

Working Hours: 40 hours per week, Fixed Term Contract until December 2026 (12 months)

Salary: £29,000 per annum

Revised: November 2025

Organization Overview

The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Overview of Responsibilities

The Graphic & Motion Designer is responsible for producing high-quality static and motion graphics that elevate the organization’s fundraising campaigns, social media presence, events, and overall digital communications. This role is essential in enhancing brand visibility and audience engagement through impactful and creative visual storytelling.

The ideal candidate is a creative thinker with a strong eye for design and animation, eager to push boundaries and experiment with new ideas. By combining innovation with strategic design, the Graphic & Motion Designer will play a key role in strengthening the organisation’s visual identity and driving digital engagement across multiple platforms.

Key Responsibilities/Essential Functions
This role has three (3) core areas of ownership, the responsibilities involved include, but are not limited to:

Graphic Design and Motion Design

• Transform creative briefs into visually compelling static and motion designs that are on-brand and aligned with project objectives.
• Produce high-quality digital and print assets, including motion graphics, videos, and static visuals for campaigns, social media, events, and digital platforms.
• Support the design and maintenance of the organization’s website and social media channels as part of the broader digital marketing strategy.
• Collaborate with the Design & Communications team to deliver purposeful, high-quality materials that reflect the organization’s visual identity and tone of voice.
• Manage workloads efficiently, particularly during peak event periods, by prioritizing and handling design requests through the ticketing system.
• Ensure brand consistency across all creative outputs, maintaining a professional and cohesive visual presence.
• Innovate and enhance motion content by contributing fresh ideas that boost engagement and advance The Society’s creative direction.
• Create impactful visual content that strengthens digital storytelling and supports awareness, fundraising, and community engagement initiatives.

Project Focus

• Take full ownership of graphic and motion design deliverables for events, programs, and key organizational initiatives.
• Maintain and apply brand guidelines across assigned projects to ensure visual consistency, cohesion, and quality in all materials.
• Develop and implement creative concepts that reflect the organization’s mission and strengthen its distinctive visual identity.
• Proactively seek opportunities to innovate, introducing fresh ideas and design approaches that enhance the impact of visual communications.
• Manage creative projects from concept through delivery, collaborating with internal teams and external partners to achieve high-quality, timely outcomes.

Departmental Processes

• Collaborate closely with the Creative & Digital Communications Director to ensure all projects are delivered on time, within scope, and to a consistently high standard.
• Support structured workflows and clear briefing processes through the ticketing system to streamline design production and project management.
• Respond promptly and effectively to design requests, maintaining clear communication, and ensuring alignment with project objectives and expectations.
• Foster a collaborative, creative team environment, contributing to a culture of excellence and consistency across all visual outputs.

Work Environment

Under normal conditions, this role is a fully remote position, working from home. However, due to the international nature of The Society’s work, staff may be required to travel to company events, meetings, and conferences as well as some weekend work.

Requirements

Education & Knowledge

• Bachelor’s degree in graphic design, motion graphics, or a related field, or an up-to-date portfolio showcasing relevant skills.
• Strong proficiency in Adobe Creative Suite (Photoshop, Illustrator, InDesign).
• Experience with video and motion graphics software such as (Premiere Pro, Adobe Audition Catalyst Browse, Vyond, Adobe Express).
• Proficiency in Microsoft Office Suite (Outlook, Word, Excel, PowerPoint).

Communication & Interpersonal Skills

• Excellent planning, organizational, and multitasking abilities, with the capacity to prioritize tasks and meet tight deadlines.
• An eye for detail, accuracy, and consistency in design and motion design.
• A conceptual thinker who approaches work logically and systematically.
• Proven ability to take ownership of projects, from brief to final delivery.
• Comfortable working in a fast-paced environment with quick turnarounds.
• Strong interpersonal skills; a collaborative, team-oriented mindset.
• Ability to work independently within a remote team.
• Interest in Ehlers-Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) is a plus but not required.

Workstyle & Flexibility

• Outstanding time management and organizational skills.
• Flexibility to collaborate across global time zones.
• Willingness to occasionally work evenings or weekends as required.

Work Environment and Travel Requirements

• Eligible to work in the UK without sponsorship.
• Reliable internet connection for remote work, video calls, and cloud-based collaboration.
• Ability to attend one in-person retreat annually in the UK.
• Willingness to travel to other in-person meetings and events as needed

Diversity Statement  

The Ehlers-Danlos Society’s commitment to diversity and inclusion is driven by the four pillars of our mission: C.A.R.E. – providing care, access, research and education in all that we do. We are a global, multicultural organization, as such we seek to increase opportunities for individuals from diversified backgrounds and are committed to building an inclusive culture that celebrates the diverse voices in our team and community. The Ehlers-Danlos Society actively recruits, employs, trains, compensates, and promotes opportunities regardless of race, nationality, ethnicity, gender, marital or civil partner status, caring responsibilities, disability, gender identity, age, social class, sexual orientation, religion, and other protected status as required by applicable law.