Imagine a world where every person living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) receives the care and support they need to thrive. At The Ehlers-Danlos Society, we are committed to making this vision a reality.

For many who spend years fighting for a diagnosis and appropriate care, the journey can be incredibly challenging and isolating. With your support, we can drive forward Care, Access, Research and Education.

At the Ehlers-Danlos Society we offer a range of ways for you to donate to our mission. Whether an individual or business wishing to give now or in the future, check out our range of giving options available to you.

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Give by Phone or Mail:

We can accept your donation via phone at US +1-410-670-7577 or UK +44-203-887-6132.
You may also send a check or money order by mail to The Ehlers-Danlos Society at the following addresses:
The Ehlers-Danlos Society 447 Broadway 2nd Fl #670, New York, NY 10013, USA
or
The Ehlers-Danlos Society, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, UK

To contact a member of The Ehlers-Danlos Society Development Team, email us at [email protected], and your request will be promptly addressed. If you would like to contact us by phone, please call the US at 410-670-7577 or the UK at +44-203-887-6132.

US:

The Ehlers-Danlos Society
447 Broadway 2nd Fl #670
New York, NY 10013

Phone: +1-410-670-7577

UK:

The Ehlers-Danlos Society
Office 7
35-37 Ludgate Hill
London, EC4M 7JN
UK

Phone: +44 203 887 6132

Honor and Memorial Gifts:

One way to honor or memorialize a loved one is by donating to The Ehlers-Danlos Society on their behalf. When you donate, you create a lasting impact for them and their families, no matter the size of your gift. We will send a letter to notify loved ones of the generous gift you’ve made in honor or remembrance.

Together We DAZZLE

Fulfilling our mission has never been more important than it is today. Donations to The Ehlers-Danlos Society are critical to our continued ability to raise awareness and visibility of EDS and HSD among the general public. With your support, we can drive forward Care, Access, Research and Education. We are committed to changing the lives of people impacted by EDS and HSD.

Make a safe, secured tax-deductible donation online using a credit card. Choose a one-time gift or make it a monthly gift!

Sponsorship:

Sponsoring and partnering with The Ehlers-Danlos Society demonstrates your organization or company’s involvement, commitment, and investment in our mission.With events happening year-round both hybrid and online, along with many sponsorship levels, it is easy to become a sponsor for one of our events.

As a valued sponsor of our event, your company/organization will gain a prime marketing opportunity that will leverage multiple platforms. This sponsorship is ideal for those excited to engage with an in-person audience through an exhibit, as well as those who wish to avoid the cost of logistics of traditional event participation. Our events offer the flexibility to connect with attendees seamlessly- whether they are at home, or in the office -via desktop, laptop, iPad, or mobile phone. Embrace the convenience and broad exposure that our event sponsorships provide.

To receive more information from our Sponsorship Coordinator, please fill out the following form and you will be contacted with further details.

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Grants:

Are you aware of any grants that align with our mission of advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder(HSD) while supporting the development of effective and equitable EDS and HSD therapies and working collaboratively to improve the lives of those affected by EDS and HSD? Sharing these opportunities with us is a valuable way to offer your support.

If you come across a grant opportunity that you believe aligns with our goals, please don’t hesitate to email us at [email protected] with the details. We highly appreciate your assistance in helping us identify resources and opportunities that can further our mission.

Matching Gifts:

Many workplace companies/organizations have programs that will match the charitable contributions made by their employees. Through gift matching, your employer can multiply the impact of your gift to The Ehlers-Danlos Society. Companies use various procedures by which employees can request matching gifts. Conditions, requirements, and how to request matching gifts vary by employer.

Matching gifts is easy! You can make a gift to The Ehlers-Danlos Society and then submit a matching gift request from your employer. Once the employer receives the matching gift, they will often send a copy to the development team at The Ehlers-Danlos Society to confirm the donation was received. Once that is received the employee will send the matching gift directly to The Ehlers-Danlos Society.

To submit a matching gift form, please email it to [email protected]

You may also choose to donate now and opt for a company match under the donation options. Simply enter the employer’s name, and if they offer a matching donation program the option will appear for you to select. 

Workplace Giving:

Workplace giving is a simple and impactful way to show support for The Ehlers-Danlos Society. Every year, many employers are allowed to direct a portion of their paycheck to a charity of their choice through company or organization workplace giving. This gives you the option to donate to the cause that is most important to you.

Workplace giving is a meaningful way to engage employees to make an easy and efficient tax-deductible donation. There are several ways to make a gift through workplace giving:

  • Employee Giving Platforms: If your employer uses an employee giving platform you can select The Ehlers-Danlos Society as the beneficiary of your donations. You can also find us on Benevity, CyberGrants, and YourCause. If your employer uses a different platform that we are not listed on please email [email protected].
  • United Way: If your workplace giving program includes United Way, you can designate The Ehlers-Danlos Society as your charity of choice. You can select us by name or enter our EIN number 38-2813140 and add The Ehlers-Danlos Society.
  • Donate through an automatic company deduction option.
  • Host a workplace giving month campaign. Contact our development team and we can help your company develop a workplace giving campaign through a variety of ways, such as online donations pages, fundraising ideas, and peer-to-peer fundraising. Email [email protected] for more information.

Planned Giving:

Leave a lasting legacy that will resonate through the lives of those living with EDS and HSD. Through planned giving, you have the opportunity to incorporate The Ehlers-Danlos Society into your long-term philanthropic vision and achieve your personal financial goals. Your generosity can provide enduring support, ensuring that your commitment to making a difference will continue for years to come.

We understand the importance of thoughtful estate planning and want to ensure you feel at ease when including The Ehlers-Danlos Society in your will, IRA, financial power of attorney, and advance healthcare directive. We are here to guide you through the process, ensuring your legacy aligns with your values and intentions. By choosing to leave a bequest to The Ehlers-Danlos Society, you create a lasting impact that extends your compassion and support well into the future.

Our partners at Lifelegacy.com make it easy. Simply click on the buttons below to learn more about the options for planned giving or get started by visiting our LifeLegacy portal.

Donor Advised Funds (DAFs):

A donor-advised fund is much like an investment account that is set up to support a charity that is near and dear to you. It’s the fastest-growing charitable giving platform because it is easy and the most tax-savvy way to give to non-profit organizations. Our partners at Every.org make initiating a grant from your DAF simple. If you’re located in the UK, you can learn more about opening a Donor-Advised Fund (DAF) account through the CAF Charitable Trust here or through NPT UK here.

Making a donor-advised fund grant has never been easier. Simply click the button below and select Donate. You will then select DAF. You will have the option to choose an instant DAF donation by using Chariot to verify your account information and automatically initiate your grant from your DAF.

Your donation is tax-deductible to the full extent allowed by the US law.

What is a Donor-Advised Fund (DAF)? 

In the most relatable terms, a donor-advised fund (DAF) is like a 401(k) or IRA for charitable giving. It allows donors to make charitable contributions, receive an immediate tax deduction, and then recommend grants from the fund over time to their favorite nonprofits.

Think of it this way: Just like the money and assets you funnel into a 401(k) are explicitly designated for retirement, the money and assets you deposit into a donor-advised fund are reserved for donations to 501(c)(3) charitable organizations.

How does a Donor-Advised Fund work?

  • Opening an Account: You can open a DAF with no minimum contribution or balance requirement.
  • Contributions: Donate cash, stocks, or other assets to your DAF and receive an immediate tax deduction, and that money grows tax-free.
  • Grant Recommendations: Recommend grants to IRS-qualified public charities at any time, either immediately or over time, like The Ehlers-Danlos Society, which is working to improve the lives of people with EDS and HSD.

What are the tax benefits of a DAF?

According to Fidelity Charitable:

When you contribute to a DAF, you get an immediate tax deduction, even if you don’t give the money to a non-profit right away. This can help reduce your tax bill now while letting you take your time deciding how to make the biggest impact.

When you set up a DAF, you don’t need to search for receipts in your inbox, desk drawer, and wherever else you may have stashed them. Your DAF account serves as a single record for every gift, which makes—at least this aspect of tax time—delightfully painless.

Can I donate assets other than cash!

Yes! You can donate things like stocks, real estate, or even shares of your business to a DAF. This can be a smart way to give, especially if those assets have grown in value, because you won’t have to pay capital gains taxes, and the full value can support your favorite causes like The Ehlers-Danlos Society.

How do I set up a Donor-Advised Fund?

Setting up a DAF is easy. You can start one with a community foundation, a financial institution, or a charitable organization that offers DAFs. You make an initial donation, and then you can continue to contribute over time, while deciding which causes to support.

Can I support any charity with my DAF?

Yes, you can recommend grants to any 501(c)(3) IRS-qualified public charity such as The Ehlers-Danlos Society.

How do I recommend a grant from my DAF?

Once your DAF is funded, you can recommend grants online, by phone, fax, or mail. You can also set up recurring grants for ongoing support to your favorite charities.

How are grants from Donor-Advised Funds distributed to charities?

When you’re ready, you can recommend grants from your DAF to organizations like The Ehlers-Danlos Society, online, by phone, fax, or mail. You can also set up recurring grants for ongoing support. We’ll receive the funds quickly and can use them to fund vital research and support programs that directly impact those living with EDS and HSD. Our partners at Every.org make initiating a grant from your DAF simple.

Can I remain anonymous when giving through a DAF?

Yes, you have the option to include your name and address or remain anonymous when recommending a grant.

How can my contributions grow over time?

Your contributions can be invested and grow tax-free, potentially increasing the amount available for future grants while you decide which charities to support.

What are the differences between a Donor-Advised Fund and a private foundation?

A DAF is much easier and less expensive to set up and run than a private foundation. With a DAF, you get all the benefits of managing your giving without the heavy paperwork and regulations that come with a foundation.

 What happens to the funds in a Donor-Advised Fund if the donor passes away?

You can name a successor to manage the DAF after you’re gone or designate non-profits like The Ehlers-Danlos Society to receive the remaining funds. This ensures that your passion for helping others continues, even after you’re no longer here.

Why Should You Give to The Ehlers-Danlos Society?

  • Impactful Mission: The Ehlers-Danlos Society is at the forefront of improving diagnosis, treatments, and care for those affected by EDS and HSD. Our work ensures that future generations, including your own family, can enjoy better health and quality of life.
  • Vital Research: Funding from donors like you helps drive crucial research that could lead to breakthroughs in understanding these complex conditions. This research is essential for finding better ways to diagnose and treat EDS and HSD.
  • Support for Families: With your help, The Ehlers-Danlos Society can provide support to thousands of families impacted by EDS and HSD, offering hope and resources to improve their daily lives.
  • Statistics to Consider: Combined, the Ehlers-Danlos syndromes (EDS) affect an estimated 1 in 5,000 people globally. HSD and hypermobile EDS together are thought to affect 1 in 600 to 1 in 900. That’s millions of individuals who could benefit from better care and treatment. Your donation can be the difference between a lifetime of pain and a future full of possibilities.

By donating through a DAF, you can maximize your impact, ensuring that your support reaches those who need it most. Your generosity today can change lives tomorrow.

Donate Cryptocurrency or Bitcoin:

When you donate bitcoin or crypto to The Ehlers-Danlos Society, you are investing in the lives of those affected by EDS and HSD. Our partners at Every.org make donating simple and safe.

Every.org makes donating simple. Simply click on the button below and once there click Donate. You will be led to a donate board where you can select crypto. There are over 70 crypto and bitcoin options to choose from.

Your donation is tax-deductible to the full extent allowed by the US law.

Stocks:

Maximize the power of your giving by donating stock to The Ehlers-Danlos Society. Not only could this provide you with significant tax benefits, but it also allows your charitable dollars to have an even greater impact.

Enhance your charitable impact by donating stock directly to The Ehlers-Danlos Society. Not only does it amplify the support received by the organization, but it can also offer you a more favorable tax position. By donating appreciated securities, you could claim a charitable deduction at their full market value, potentially bypassing capital gain taxes. It’s a win-win: The Ehlers-Danlos Society gets more support, and you might reduce your tax liability.

To understand the specific benefits of your situation, especially if your stock has appreciated or depreciated since purchase, consult your financial advisor. They can provide more specific advice on how stock donations could affect your taxes.

Our partners at Every.org make donating stocks easy and safe. Simply click on the button below and hit donate, then select stocks and follow the prompts.

US only Giving Options

Donate a Car:

Donating your car or vehicle to The Ehlers-Danlos Society is a great way to get a 2024 federal tax deduction (state income tax deductibility depends on state law), and our partners at CARS make it easy.

How does the vehicle donation program work? Donors call CARS or contact them online. CARS will arrange free pick-up, sell the car at auction, and send the proceeds to The Ehlers-Danlos Society. CARS will then send you, the donor, your tax paperwork.

To donate, click the button below or call the vehicle donation toll-free number at 800-500-7433(RIDE).

Venmo:

Looking for a speedy way to support our cause while you’re on the move? We’re excited to share that you can now make donations directly through Venmo!

Donate with Venmo today and join us in making a difference in the lives of those living with EDS and HSD. This quick and secure method allows you to contribute at your convenience, ensuring your generosity makes an impact even when you’re busy or on the go.

Venmo donations are possible through the Venmo app for iOS and Android devices. To make a charitable donation through Venmo please use the QR code provided.

The Ehlers-Danlos Society Venmo

Shop for a Cause (US and Canada Only): 

iGive.com is changing online shopping for good. 

Now more than ever, smart shoppers are looking for ways to stretch every dollar. In these uncertain economic times, we all face hard choices as we plan for special occasions, holiday gifts, and charitable giving. With iGive.com, you don’t have to choose between buying something or sending a donation to The Ehlers-Danlos Society. Now you can buy the things you need, save money with exclusive iGive coupons and deals, and feel good knowing that a portion of each purchase benefits our organization. 

UK only Giving Options

Shop for a Cause:

Are you looking to do a bit of shopping and make a positive impact at the same time? With our “Shop for a Cause” program, it’s simple: every purchase you make results in a donation to our cause. Enjoy your favorite products while contributing to a great cause!

Make every purchase count! Our partners at Easy Fundraising make it effortless.

Download the app, and each time you shop online, choose to have a donation directed to The Ehlers-Danlos Society. Whether it’s a percentage of your sale or a flat donation from participating businesses, every transaction contributes to our cause. Your everyday shopping can bring about extraordinary change!

Transparent Giving, Trusted Impact. You Deserve to Give With Confidence.

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