The Ehlers-Danlos Society EDS and HSD Global Registry

New Registry – Coming Soon!

We are excited to announce that we are moving to our new EDS & HSD Global Registry in the new year. In light of this exciting new move we have now closed the current registry for new applications. If you wish to participate in the HEDGE Study, please contact us for more information. 

Once the move to the new registry has taken place, we will be in touch with everyone currently registered with the registry with information on next steps, as well as releasing information for all those who are not yet involved on how to join. 

We are incredibly excited for this move to a more user friendly and accessible EDS and HSD Global Registry and we will release new information both on our website and email once this platform is ready for use. 

We thank you for your patience and understanding at this time. Please do contact us using the button below should you have any questions regarding the current or new EDS & HSD Global Registry.