Join our Virtual Support Groups to find
Meet and connect with others in the EDS & HSD community
Our helpline team can be contacted via email or telephone, to answer your questions about the Ehlers-Danlos syndromes and hypermobility spectrum disorders.
The Ehlers-Danlos Society acknowledges how hard it is to find an EDS and HSD-friendly specialist across various disciplines globally, so to further our commitment to your access to management and care we have created a database that is populated by professionals submitting their information to our site.
The Ehlers-Danlos Society provides listings of support groups and charity organizations from around the world who support those living with a type of EDS and HSD. These groups are a great way to find local information, resources, and support.
What would you like others to know about your life with an Ehlers-Danlos syndrome or hypermobility spectrum disorder? We want to share your story!
Hi everyone! My name Lauren Brown and I have Hypermobile Ehlers-Danlos Syndrome and POTS. I...
I was 18 years old when I moved to New York from the Philippines for...