EDS ECHO Healthcare Professionals

EDS ECHO Programs & Courses for Healthcare Professionals

EDS ECHO is a series of programs and courses for healthcare professionals across all disciplines who want to improve their ability to care for people with Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and associated symptoms and conditions. Enhancing care for people with all types of EDS and HSD through case-based discussions, sharing knowledge, and expert updates is at the heart of what we do.

Please scroll down to view all of our EDS ECHO Programs and Courses for professionals.

How Are Sessions Structured?

Each Program is made up of a series of Sessions that explore various aspects of care in EDS and HSD. Each session is 1hr 30 minutes in length; except the EDS ECHO Pediatrics North America Program and the EDS ECHO Drop-in Sessions, which are 1hr in length.

The format for most sessions includes a didactic presentation by an expert and discussion of participant-submitted cases. Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support.

What is Case-Based Learning?

The ECHO model uses case-based learning. Participants can either ask specific questions or they can present de-identified cases from their own practice where there is a concern about any aspect of the diagnosis or management of EDS and HSD or their complications.

The session group, with expert specialist support, discuss the cases and provide guidance. All are encouraged to participate if they feel able.

Who Can Participate?

EDS ECHO Programs and Courses are open to healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions.

Can I Earn Educational Credits?

CME/CEU/CE credits are available to healthcare professionals. Credits are awarded at 1 per 60 minutes of live session activity. An Ehlers-Danlos Society ‘Certificate of Attendance’ can also be provided upon request.

What if I Can’t Attend a Session?

In order to obtain the most benefit from the program, participants are encouraged to attend as many live sessions as possible. You will be able to catch up on the sessions you miss by watching the password-protected session content which will be made available to participants through The Ehlers-Danlos Society’s resources page after each session. However, please note that CME Credits can only be claimed for attendance at live sessions.

How Much Does it Cost to Join an EDS ECHO Program?

EDS ECHO relies on donations, grants, and participant fees to cover costs. For some of our EDS ECHO professionals’ programs there is a nominal fee. Fees vary and we aim to keep these as low as possible; the fee for each program is shown in the banners below, and on its registration page.

EDS ECHO CLINICIANS

EDS ECHO Clinicians is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. The program focuses on older adolescent and adult care. Please see our Pediatric programs if your focus is childcare.

The Clinicians programs run from four regions internationally. Click the banners below for more information on each of them.

EDS ECHO MULTIDISCIPLINARY TEAM PRACTICE

The EDS ECHO Multidisciplinary Team Practice (MDTP) programs offer a unique educational experience and networking opportunity for healthcare professionals worldwide. It is designed for those currently involved in clinical work or planning to work with clients with Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD), with the aim of improving their ability to care for people with EDS, HSD and associated symptoms and conditions.

Through a comprehensive series of modules, the program will explore patient care in EDS and HSD across the breadth of medicine, surgery, psychiatry, and allied healthcare practice.

The program aims to equip participants with the knowledge, skills, and confidence needed to enhance the assessment and management of EDS and HSD, while also promoting collaboration and networking for clinical support.

  • EDS ECHO Multidisciplinary Team Practice Europe

    EDS ECHO Multidisciplinary Team Practice Europe

    About EDS ECHO Multidisciplinary Team Practice (MDTP) Europe

    The EDS ECHO Multidisciplinary Team Practice (MDTP) Europe program offers a unique educational experience and networking opportunity for healthcare professionals worldwide. It is designed for those currently involved in clinical work or planning to work with clients with Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD), with the aim of improving their ability to care for people with EDS, HSD and associated symptoms and conditions.

    Through a comprehensive series of modules, the program will explore patient care in EDS and HSD across the breadth of medicine, surgery, psychiatry, and allied healthcare practice. The program aims to equip participants with the knowledge, skills, and confidence needed to enhance the assessment and management of EDS and HSD, while also promoting collaboration and networking for clinical support.

    Click the banners below for more information.

    Program Curriculum and Structure

    The program is structured into five themed modules over two years. Each module is facilitated and supported by a team of core colleagues and specialists, ensuring a wide range of expertise to foster discussions and promote multidisciplinary networking.

    The facilitators for this program are Assoc. Prof. Dr. Alan Hakim and Prof. Jane Simmonds from London, UK.

    Each module comprises six sessions, with each session featuring expert presentations and interactive case-based discussions conducted virtually through the Zoom platform, with each session lasting 1hr 30 minutes in length.

    Participants are encouraged to attend all the modules but do have the flexibility to select those that most align with their interests and needs, although it is recommended that those new to EDS and HSD attend the ‘Introduction to EDS and HSD’ module.

    Details about the program modules, topics, dates, and times are provided below.

    Participants are encouraged to actively participate by sharing their cases and questions during the sessions, and they will be guided toward additional resources and support.

    Program Aims and Objectives:

    The program is suitable for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. In addition to gaining expertise in EDS and HSD diagnosis, assessment, treatment, and the latest evidence-based insights, participants will also be able to network and foster collaboration. These collaborative efforts are at the core of the program, underscoring the importance of working collectively with colleagues from various healthcare disciplines. The aims and objectives are:

    • Recognition and Diagnosis: enhancing confidence in recognizing the different types of EDS and HSD, how to diagnose them, and when and where to refer.
    • Assessment and Treatment: appreciating the assessment and treatment options for managing EDS and HSD and their comorbidities. The program will explore the evidence for association and causation in these comorbidities and understand how they impact assessment and treatment choices and adaptations. Participants will learn about various tools and methods, to assist in managing patients’ conditions, all aiming to improve patient outcomes.
    • Research Insight: gaining insight into the clinical and basic science questions that currently influence the field’s research objectives, contributing to the advancement of knowledge in EDS and HSD.
    • Multidisciplinary Collaboration: valuing the multidisciplinary team in best practice management, encouraging participants to work collaboratively with colleagues from the many and varied healthcare disciplines involved in the care of people with EDS and HSD.

    Program Fees

    Participants can choose which modules they wish to attend – although participants are encouraged to attend the module  ‘Introduction to EDS and HSD if they are new to EDS and HSD.

    Each module costs $30 USD per participant to attend.

  • EDS ECHO Multidisciplinary Team Practice Australasia

    EDS ECHO Multidisciplinary Team Practice Australasia

    About EDS ECHO Multidisciplinary Team Practice (MDTP) Australasia

    The EDS ECHO Multidisciplinary Team Practice (MDTP) Australasia program offers a unique educational experience and networking opportunity for healthcare professionals worldwide. It is designed for those currently involved in clinical work or planning to work with clients with Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD), with the aim of improving their ability to care for people with EDS, HSD and associated symptoms and conditions.

    Through a comprehensive series of modules, the program will explore patient care in EDS and HSD across the breadth of medicine, surgery, psychiatry, and allied healthcare practice.

    Click the banners below for more information.

    Program Curriculum and Structure

    The program is structured into five themed modules over two years. Each module is facilitated and supported by a team of core colleagues and specialists, ensuring a wide range of expertise to foster discussions and promote multidisciplinary networking.

    The facilitators for this program are Dr. Fraser Burling and Anita Crawshaw from New Zealand and Nicole Frost, Pauline Slater and Jacqui Main from Australia.

    Each module comprises five sessions, with each session featuring expert presentations and interactive case-based discussions conducted virtually through the Zoom platform, with each session lasting 1hr 30 minutes in length.

    Participants are encouraged to attend all the modules but do have the flexibility to select those that most align with their interests and needs, although it is recommended that those new to EDS and HSD attend the ‘Introduction to EDS and HSD’ module.

    Details about the program modules, topics, dates, and times are provided below.

    Participants are encouraged to actively participate by sharing their cases and questions during the sessions, and they will be guided toward additional resources and support.

    Program Aims and Objectives:

    The program is suitable for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. In addition to gaining expertise in EDS and HSD diagnosis, assessment, treatment, and the latest evidence-based insights, participants will also be able to network and foster collaboration. These collaborative efforts are at the core of the program, underscoring the importance of working collectively with colleagues from various healthcare disciplines. The aims and objectives are:

    • Recognition and Diagnosis: enhancing confidence in recognizing the different types of EDS and HSD, how to diagnose them, and when and where to refer.
    • Assessment and Treatment: appreciating the assessment and treatment options for managing EDS and HSD and their comorbidities. The program will explore the evidence for association and causation in these comorbidities and understand how they impact assessment and treatment choices and adaptations. Participants will learn about various tools and methods, to assist in managing patients’ conditions, all aiming to improve patient outcomes.
    • Research Insight: gaining insight into the clinical and basic science questions that currently influence the field’s research objectives, contributing to the advancement of knowledge in EDS and HSD.
    • Multidisciplinary Collaboration: valuing the multidisciplinary team in best practice management, encouraging participants to work collaboratively with colleagues from the many and varied healthcare disciplines involved in the care of people with EDS and HSD.

    Program Fees

    Participants can choose which modules they wish to attend – although participants are encouraged to attend the module  ‘Introduction to EDS and HSD if they are new to EDS and HSD.

    Each module costs $25 USD per participant to attend.

EDS ECHO DROP-IN SESSIONS

The EDS ECHO Drop-in Sessions programs are a series of once-monthly sessions throughout the year for participants (past or present) who have attended any of our healthcare professionals’ EDS ECHO programs, including Allied Health and Pediatrics.

The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. This can be in the form of a specific question or a short case history brought to the live session. Questions or cases should not be submitted in advance.

There are two Drop-in Sessions programs. Click the banners below for more information on each of them.

  • EDS ECHO Drop-in Sessions North America & Europe

    About EDS ECHO Drop-in Sessions North America & Europe

    The EDS ECHO Drop-in Sessions North America & Europe program is a monthly drop-in session for participants (past or present) who have attended any of our healthcare professionals’ EDS ECHO programs. Each session is 1hr in length and uses the Zoom platform. 

    Each session will be co-facilitated by Dr. Alan Hakim from London, UK, and Dr. Clair Francomano from Indianapolis, US.

    The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. This can be in the form of a specific question or a short case history brought to the live session. Questions or cases should not be submitted in advance.

    Program Fees

    This a free program for healthcare professionals. Please note that CME/CEU/CU credits are not available for these sessions.

    How Do I Register?

    Although the sessions are timetabled for participants based in North America & Europe, any EDS ECHO professional participant from any region can attend. Registration is open throughout the year.

  • EDS ECHO Drop-in Sessions Australasia

    EDS ECHO Drop-in Australasia

    About EDS ECHO Drop-in Sessions Australasia

    The EDS ECHO Drop-in Sessions Australasia program is a monthly drop-in session for participants (past or present) who have attended any of our healthcare professionals’ EDS ECHO programs. Each session is 1hr in length and uses the Zoom platform.

    Each session will be facilitated by Dr. Fraser Burling, from Auckland, New Zealand, and at least one other guest Clinician.

    The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. This can be in the form of a specific question or a short case history brought to the live session. Questions or cases should not be submitted in advance.

    Program Fees

    This a free program for healthcare professionals. Please note that CME/CEU/CU credits are not available for these sessions.

    How Do I Register?

    Although the sessions are timetabled for participants based in the Australasia region, any EDS ECHO professional participant from any region can attend.

    Registration is closed for the EDS ECHO Drop-in Sessions Australasia Program. Please check our ECHO home page, social media announcements, or subscribe to our EDS ECHO Newsletter for program updates.

EDS ECHO ALLIED HEALTH PROFESSIONALS

The EDS ECHO Allied Health Professionalsprogram is a virtual program for Allied Health Professionals from all over the world, run from three hubs in North America, UK and Europe and Australia. 

This program is suitable for Physical Therapists, Podiatrists, Clinical Psychologists, Occupational Therapists, Speech and Language Therapists, Dieticians, and Nutritionists.

The Allied Health Professional (AHP) programs are divided into thematic modules. Each region delivers different combinations of these modules across the year. Participants can choose to join as many of the modules as they wish.

AHP’s are encouraged to also join the Clinicians’ programs, including the Drop-in sessions, and Pediatrics programs, and may also be interested in the IMM Course.

Click the banners below for more information on each program.

  • EDS ECHO Allied Health Professionals North America

    About EDS ECHO Allied Health Professionals North America

    The EDS ECHO Allied Health Professionals North America program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

    The program is divided into thematic modules delivered across the year. Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Introduction to EDS and HSD if they are new to EDS and HSD. 

    Each module is composed of 3 to 4 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by is led by Dr. Leslie Russek, Dr. Patricia Stott and Emily Rich from the USA.

    Program Fees

    Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, Introduction to EDS and HSD if they are new to EDS and HSD.

    Each module costs $20 USD per participant to attend.

    How Do I Register?

    Registration for the EDS ECHO Allied Health Professionals North America program is closed.

    Registration for the EDS ECHO Allied Health Professionals North America Course is currently closed. Please check our ECHO home page, social media announcements, or subscribe to our EDS ECHO Newsletter for course updates.
  • EDS ECHO Allied Health Professionals Masterclass North America

    EDS ECHO Allied Health Professionals Masterclass North America

    About EDS ECHO Allied Health Professionals Masterclass North America: Manual Interventions

    The EDS ECHO Allied Health Professionals Masterclass North America ‘Manual Interventions’ module is a virtual program designed to advance the manual skills and knowledge, regarding our HSD/EDS population, for our allied health professionals while creating healthy provider networking.

    This module is suitable for any provider that provides hands-on work to those with HSD/EDS. We also encourage any health professionals interested in learning about these modalities to facilitate improved referrals to appropriate providers.

    This program is facilitated by Patricia Stott and will be divided into four thematic sessions. In the program, Patty will introduce the structural and systemic differences to consider in a patient with symptomatic hypermobility when applying manual strategies. Eloise Stager will discuss craniosacral therapy, and Gail Wetzler will review visceral, vascular, and neural techniques. Kellie Barnes will present on fascial counterstrain.

    Each session lasts for 1 hour and 30 minutes and features expert presentations and interactive case-based discussions conducted virtually through the Zoom platform. You can view the program schedule and the overview for each session in the table below.

    Who Can Participate?

    Participants must have completed Module 1 of our EDS ECHO Allied Health Professionals North America program, ‘Introduction to EDS and HSD’ or attended the EDS ECHO Clinicians program.

    Program Fees

    There is a nominal fee of $20 USD per participant for this program.

  • EDS ECHO Allied Health Professionals UK/Europe

    About EDS ECHO Allied Health Professionals UK/Europe

    The EDS ECHO Allied Health Professionals UK/Europe program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

    The program is divided into thematic modules delivered across the year. Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Foundation Course – Introduction to EDS and HSD’ if they are new to EDS and HSD. 

    Each module is composed of 3 to 4 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Dr. Jane Simmonds from London, UK.

    Program Fees

    Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Foundation Course – Introduction to EDS and HSD if they are new to EDS and HSD.

    Each module costs $20 USD per participant to attend.

    How Do I Register?

    PLEASE NOTE: The EDS ECHO Allied Health Professionals UK/Europe program has merged with the EDS ECHO Clinicians UK/Europe program to form the EDS ECHO Multidisciplinary Team Practice Europe program, which is now accepting registrations. For more information please click here.
  • EDS ECHO Allied Health Professionals Australasia

    EDS ECHO AHP Australia

    About EDS ECHO Allied Health Professionals Australasia

    The EDS ECHO Allied Health Professionals Australasia program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

    The program is divided into thematic modules delivered across the year. Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Introduction to EDS and HSD if they are new to EDS and HSD. 

    Each module is composed of 5 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Nicole Frost, Jacqui Main and Pauline Slater from Australia.

    Program Fees

    Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, Introduction to EDS and HSD if they are new to EDS and HSD.

    Each module costs $25 USD per participant to attend.

    How Do I Register?

    PLEASE NOTE: The EDS ECHO Allied Health Professionals Australasia program has merged with the EDS ECHO Clinicians Australasia program to form the EDS ECHO Multidisciplinary Team Practice Australasia program. For more information please click here.

EDS ECHO FINDING FUNCTIONAL FOUNDATIONS

The EDS ECHO Finding Functional Foundations (FFF)™ course is suitable for licensed physical therapists/physiotherapists wanting to learn how to use principles of neuroplasticity to retrain alignment and stability in hypermobile patients. Using biofeedback and specific cuing methods, this approach retrains the brain allowing patients to improve faulty proprioception, strengthen deep stabilizers, learn proper physical alignment, and apply those skills to functional movement. This leads to decreased pain and neurological symptoms, and improved function.

The FFF course runs from the U.S. and is led by Susan Chalela. Click the banner below for more information.

  • EDS ECHO Finding Functional Foundations

    About EDS ECHO Finding Functional Foundations

    The EDS ECHO Finding Functional Foundations (FFF)™ course is suitable for licensed physical therapists/physiotherapists wanting to learn how to use principles of neuroplasticity to retrain alignment and stability in hypermobile patients. Using biofeedback and specific cuing methods, this approach retrains the brain allowing patients to improve faulty proprioception, strengthen deep stabilizers, learn proper physical alignment, and apply those skills to functional movement. This leads to decreased pain and neurological symptoms, and improved function.

    Who Can Participate?

    For safety reasons, this program is currently only available to licensed physical therapists/physiotherapists who are currently treating patients with EDS/HSD. We hope to make it available to other health professionals in the future.

    Course Curriculum and Structure

    The course has nine 2-hour sessions across 13 weeks, with three modules of three weeks separated by two-week breaks. Sessions are on the Zoom platform. During the program, participants can also access professionally produced training videos created by Susan.

    Each session will include presentation, demonstration, hands-on lab practice, and case discussion.

    Participants must be able and willing to engage in the hands-on exercise activities, i.e., participants cannot just watch or listen. Participant safety screening and accommodations for all movement training will be discussed and applied as they would be applied to patients.

    All sessions are led by Susan Chalela with Prof. Leslie Russek assisting.

    Course Assessment

    To receive a Certificate of Completion in the FFF approach, participants must:

    1. Attend at least 7 of 9 sessions live, and must view any missed sessions.
    2. Submit an FFF Care Plan describing an 8-session treatment program for one client using the FFF approach. The care plan must use the template provided and include the contents included in the template. Each treatment program will be reviewed by Susan and Leslie to ensure that it accurately reflects the FFF approach. If the treatment program has significant gaps, the participant will be given feedback regarding ways in which it might not have followed the FFF approach. Participants who demonstrate a full understanding of the FFF approach are eligible for the Certificate of Completion in the FFF approach. Participants may revise their FFF Care Plan once, if needed, to demonstrate competency.

    A Certificate of Attendance from the Ehlers-Danlos Society will be provided to participants at the end of the course, even if those individuals have not completed the ‘FFF Care Plan’.

    Course Fees

    The Finding Functional Foundations (FFF)™ course costs $500 USD per participant, which includes 18 hours of coursework plus course materials and access to Susan’s professionally created training videos during the course, time to complete the Care Plan Assessment, a Certificate of Completion and 18 AMA PRA Category 1 Credits™ Continuing Education (CE) credits.

    Course costs are in USD (United States Dollars). Please use your preferred currency converter to convert into your local currency. Please note, refunds are not available if you are unable to complete the course.

    Equipment Needs

    Participants must also have access to some of the key equipment to engage in the lab activities; this equipment is also necessary to fully implement these principles with patients.

    Participants must have access to the following equipment to participate in the lab activities. Many participants are likely to already own some of this equipment or may be able to use their clinic equipment for the specific labs. Participants also need access to several pillows and space to lie down, sit or stand to perform movement labs.

    Click HERE to view the equipment list

EDS ECHO FUNDAMENTALS OF THE INTEGRAL MOVEMENT METHOD

The EDS ECHO Fundamentals of the Integral Movement Method (IMM) is a virtual course for healthcare professionals wishing to learn more about movement strategies that can be implemented in their own practice.

The IMM course runs from London, UK, and is led by Jeannie Di Bon. Click the banner below for more information.

  • EDS ECHO Fundamentals of the Integral Movement Method

    EDS ECHO IMM

    About EDS ECHO Fundamentals of the Integral Movement Method

    The EDS ECHO Fundamentals of the Integral Movement Method (IMM) is a virtual course facilitated and taught by Jeannie Di Bon. The course will encourage you to learn from others and share clinical experience and methods in Movement Therapy, increasing your confidence and ability to work safely and effectively with EDS and HSD clients.

    The course is suitable for healthcare therapists worldwide, working in physical therapies and seeing clients with EDS or HSD, including, for example, physiotherapists, osteopaths, Pilates teachers, yoga instructors, and personal trainers.

    The learning objectives of the course are:

    • To understand how a Movement Therapy method is effective.
    • To learn movement strategies that can be implemented in the participants’ own practice.
    • To gain confidence in assisting people with EDS and HSD with exercise.

    Course Curriculum and Structure

    The course is composed of nine sessions timetabled across a 12 or 15-week period. Each session is two hours in length and uses the Zoom platform.

    The course covers the following topics:

    • The physical, emotional, and psychological aspects of these conditions
    • Understand why we do need a unique strategy for this population of patients and clients
    • Applying the Integral Movement Method in practice
    • The pain mechanisms of hypermobility and how to manage these
    • Essential breath and relaxation techniques
    • A safe way to build proprioception
    • A new approach to stability
    • Introducing balance safely
    • Integrated posture of body and mind
    • Case study analysis to build an integrated movement programme for our patients and clients

    The format of most sessions will include didactic presentations and learning, break-out room learning exercises related to specific topics and discussions surrounding case studies.

    Participants will be required to participate in short exercise classes to help with the practical learning of the IMM principles.  These will be mat based exercises.  You may also be asked to teach another participant to demonstrate your understanding of the principles during break out room sessions.

    Course Assessment

    To gain a certificate of completion, each participant must attend at least 7 out of the 9 live sessions. They must also submit a case plan describing an 8-week exercise program for one of their clients (the ‘IMM 8-Week Client Program’). The plan will be assessed by the course lead, Jeannie Di Bon. Successful participants will be entered into a directory of Movement practitioners.

    A certificate of attendance from the Ehlers-Danlos Society will also be provided at the end of the course.

    Periodic drop-in sessions with the course lead will be held following completion of the course.

    Course Fees

    The course costs $500 USD per participant, which includes 18 hours of teaching plus course materials, care plan assessment, 18 Category 1 Continuing Education (CE) credits, certificate of completion, and inclusion on a network directory of therapists upon successful completion of the course.

    How Do I Register?

    Registration for the EDS ECHO Fundamentals of the Integral Movement Method (IMM) Course is currently closed. Please check our ECHO home page, social media announcements, or subscribe to our EDS ECHO Newsletter for course updates.

EDS ECHO PEDIATRICS

EDS ECHO Pediatricsis a virtual program for Healthcare Professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.

The Pediatrics programs run from two regions internationally. Click the banners below for more information on each program.

EDS ECHO GENETICS & GENOMICS

EDS ECHO Genetics & Genomics is a free program suitable for lab based geneticists and healthcare professionals who are actively involved in or wishing to learn more about genetic and genomic assessment of the Ehlers-Danlos syndromes and allied conditions.

The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support. Each session is 1hr in length and delivered virtually via the Zoom platform.

  • EDS ECHO Genetics & Genomics

    EDS ECHO Genetics & Genomics

    About EDS ECHO Genetics & Genomics

    EDS ECHO Genetics & Genomics is a free program suitable for lab based geneticists and healthcare professionals who are actively involved in or wishing to learn more about genetic and genomic assessment of the Ehlers-Danlos syndromes and allied conditions.

    Each session will be co-facilitated by Dr. Irman Forghani and Dr. Clair Francomano.

    The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support. Each session is 1hr in length and delivered virtually via the Zoom platform.

    Program Fees

    This a free program for healthcare professionals. Please note that CME/CEU/CU credits are not available for these sessions.

    How Do I Register?

    Although the sessions are timetabled for participants based in North America & Europe, any EDS ECHO professional participant from any region can attend. Registration is open throughout the year.

EDS ECHO HEALTHCARE STUDENT PROGRAM

EDS ECHO at The Ehlers-Danlos Society is delighted to announce its inaugural EDS ECHO Healthcare Student Program for 2024. This unique program is supported by a generous donation and is available to participants for freeStudents studying any healthcare discipline at a recognized organization/institution anywhere around the world may apply.

  • EDS ECHO Healthcare Student Program

    EDS ECHO Healthcare Student Program

    About EDS ECHO Healthcare Student Program

    EDS ECHO at The Ehlers-Danlos Society is delighted to announce its inaugural EDS ECHO Healthcare Student Program for 2024. This unique program is supported by a generous donation and is available to participants for freeStudents studying any healthcare discipline at a recognized organization/institution anywhere around the world may apply. The term healthcare discipline is broad and includes, for example, anyone studying physical therapies, occupational therapy, podiatry, nutrition, clinical psychology, counselling, nursing, midwifery, pharmacy, medical assistant practice, paramedic practice, dentistry or medicine etc.

    EDS ECHO has five years of experience running a breadth of educational programs that cover all the disciplines involved in the care of people with Ehlers-Danlos syndromes (EDS) or Hypermobility Spectrum Disorders (HSD). Our portfolio includes programs in Pediatric and Adult Medicine, Allied Health Professional Practice, Clinical Genetics, and themed specialty programs, e.g., Nutrition. Through this and other major programs of work at The Ehlers-Danlos Society we have developed an extensive network of clinicians, clinical researchers, and laboratory academics who support our educational projects. 

    How to Apply

    Each Healthcare Student Program award is equivalent to $1800 in value. Twenty awards are available and will be allocated competitively based on completion of our application process which includes a personal statement as to what you wish to gain from participating in the program.

    Applications will be accepted through November 10, 2023 at 5:00pm Eastern Time (US & Canada).

EDS ECHO NUTRITION

The EDS ECHO Nutrition program is a learning and networking opportunity for qualified nutrition professionals and healthcare professionals interested in understanding more about the role of diet and nutrition in supporting associated symptoms and conditions of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.

The program is facilitated by Lorna Ryan and divided into 6 thematic sessions delivered by Lorna & fellow nutrition and dietetic specialists Helen SpriggsBonnie NasarLaurie Bilyeu and Cheryl Harris, experts in the field and form the Diet and Nutrition Working Group the International Consortium on EDS and HSD. This is a virtual program using the Zoom platform.

  • EDS ECHO Nutrition

    EDS ECHO Nutrition

    About EDS ECHO Nutrition

    The EDS ECHO Nutrition program is a learning and networking opportunity for qualified nutrition professionals and healthcare professionals interested in understanding more about the role of diet and nutrition in supporting associated symptoms and conditions of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.

    The program is facilitated by Lorna Ryan and divided into 6 thematic sessions delivered by Lorna & fellow nutrition and dietetic specialists Helen SpriggsBonnie NasarLaurie Bilyeu and Cheryl Harris, experts in the field and form the Diet and Nutrition Working Group the International Consortium on EDS and HSD. This is a virtual program using the Zoom platform.

    Each 90-minute session consists of a 1-hour expert presentation and a 30-minute case review, focusing on older adolescent and adult care. Participants are encouraged to attend the whole program for continuity and to gain all learning outcomes. Participants can ask questions or present de-identified cases from their own practice where there is a concern about any aspect of nutritional management of EDS and HSD or their complications.

    The program is suitable for nutrition and healthcare professionals worldwide, working clinically and currently working with / planning to work with EDS or HSD clients.

    Please note that CME/CEU/CU credits are not available for these sessions. However, an Ehlers-Danlos Society ‘Certificate of Attendance’ can be provided upon request.

    Program Fees

    There is a nominal fee of $30 USD per participant for this program.

    How Do I Register?

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