EDS ECHO Healthcare Professionals

EDS ECHO Professionals

EDS ECHO Programs & Courses for Healthcare Professionals

EDS ECHO is a series of programs and courses for healthcare professionals across all disciplines who want to improve their ability to care for people with Ehlers-Danlos Syndromes (EDS), hypermobility spectrum disorders (HSD) and associated symptoms and conditions. Enhancing care for people with all types of EDS and HSD through case-based discussions, sharing knowledge, and expert updates is at the heart of what we do.

Please scroll down to view all of our EDS ECHO Programs and Courses for professionals.

How Are Sessions Structured?

Each Program is made up of a series of Sessions that explore various aspects of care in EDS and HSD. Each session is 1hr 30 minutes in length; except the EDS ECHO Pediatrics North America Program and the EDS ECHO Drop-in Sessions, which are 1hr in length.

The format for most sessions includes a didactic presentation by an expert and discussion of participant-submitted cases. Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support.

What is Case-Based Learning?

The ECHO model uses case-based learning. Participants can either ask specific questions or they can present de-identified cases from their own practice where there is a concern about any aspect of the diagnosis or management of EDS and HSD or their complications.

The session group, with expert specialist support, discuss the cases and provide guidance. All are encouraged to participate if they feel able.

Who Can Participate?

EDS ECHO Programs and Courses are open to healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions.

Can I Earn Educational Credits?

CME/CEU/CE credits are available to healthcare professionals. Credits are awarded at 1 per 60 minutes of live session activity. An Ehlers-Danlos Society ‘Certificate of Attendance’ can also be provided upon request.

What if I Can’t Attend a Session?

In order to obtain the most benefit from the program, participants are encouraged to attend as many live sessions as possible. You will be able to catch up on the sessions you miss by watching the password protected session content which will be made available to participants through the Ehlers-Danlos Society’s resources page after each session. However, please note that CME Credits can only be claimed for attendance at live sessions.

How Much Does it Cost to Join an EDS ECHO Program?

EDS ECHO relies on donations, grants, and participant fees to cover costs. For some of our EDS ECHO professionals’ programs there is a nominal fee. Fees vary and we aim to keep these as low as possible; the fee for each program is shown in the banners below, and on its registration page.

EDS ECHO CLINICIANS

EDS ECHO Clinicians is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. The program focuses on older adolescent and adult care. Please see our Pediatric programs if your focus is childcare.

The Clinicians programs run from four regions internationally. Click the banners below for more information on each of them.

EDS ECHO Clinicians North America

About EDS ECHO Clinicians North America

The EDS ECHO Clinicians North America program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

The program is divided into two thematic modules: ‘EDS and HSD Diagnosis, Pain and MSK Management’ and ‘EDS and HSD Co-morbidities and Related Complications’. 

Each module is composed of 6 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Dr. Clair Francomano from Indianapolis, USA.

Program Fees

Participants can choose which module they wish to attend – although participants are encouraged to attend the module, ‘EDS and HSD Diagnosis, Pain and MSK Management’ if they are new to EDS and HSD.  

Each module costs $30 USD per participant to attend.

EDS ECHO Clinicians UK/Europe

About EDS ECHO Clinicians UK/Europe

The EDS ECHO Clinicians UK/Europe program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

The program is divided into two thematic modules: ‘EDS and HSD Diagnosis, Pain and MSK Management’ and ‘EDS and HSD Co-morbidities and Related Complications’. 

Each module is composed of 6 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Dr. Alan Hakim from London, UK.

Program Fees

Participants can choose which module they wish to attend – although participants are encouraged to attend the module, ‘EDS and HSD Diagnosis, Pain and MSK Management’ if they are new to EDS and HSD.  

Each module costs $30 USD per participant to attend.

EDS ECHO AUSTRALASIA

About EDS ECHO Clinicians Australasia

The EDS ECHO Clinicians Australasia program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

The program is composed of 8 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Dr. Fraser Burling from Auckland, New Zealand.

Program Fees

There is a nominal fee for participants to attend this program.

EDS ECHO CLÍNICO EN ESPAÑOL

Acerca del programa EDS ECHO Clínico en Español

Este es un programa gratuito para profesionales de la salud hispanohablantes de todo el mundo, en todas las disciplinas, que quieran mejorar sus habilidades para atender los síntomas y condiciones asociadas de personas con Síndrome de Ehlers Danlos (SED) y Trastornos del Espectro Hipermóvil (TEH).

El programa consiste en presentaciones por expertos y sesiones interactivas basadas en casos clínicos que se discuten virtualmente a través de la plataforma Zoom. Cada sesión tiene una duración de 1 h. 30 min. y están dirigidas por la Dra. Joanna Delgado Falcon Cooper y la Dra. Patricia Grether de México.

El programa se desarrolla en 8 sesiones y cubre los siguientes temas:

  • Tejido conectivo. Estructura y función
  • Síndrome de Ehlers Danlos hipermóvil y el Trastorno del Espectro de Hipermovilidad
  • Síndromes de Ehlers Danlos poco comunes
  • Síndrome de Ehlers Danlos hipermóvil y neuropsiquiatría
  • Resignificando el SED
  • Disautonomía en niños y adolescentes
  • Ortopedia en el SED
  • Trastornos por activación de células mastocíticas

Tarifas del programa

Hay una tarifa nominal de $40 USD por participante para este programa.

Disclaimer: Written and text resources are translations of the original in English for information purposes only, translated by volunteers.
In case of a discrepancy, the English original will prevail.

EDS ECHO DROP-IN SESSIONS

The EDS ECHO Drop-in Sessions programs are a series of once-monthly sessions throughout the year for participants (past or present) who have attended any of our healthcare professionals’ EDS ECHO programs, including Allied Health and Pediatrics.

The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. This can be in the form of a specific question or a short case history brought to the live session. Questions or cases should not be submitted in advance.

There are two Drop-in Sessions programs. Click the banners below for more information on each of them.

EDS ECHO Drop-in SEssions North America and Europe

About EDS ECHO Drop-in Sessions North America & Europe 

The EDS ECHO Drop-in Sessions North America & Europe program is a monthly drop-in session for participants (past or present) who have attended any of our healthcare professionals’ EDS ECHO programs. Each session is 1hr in length and uses the Zoom platform. 

Each session will be co-facilitated by Dr. Alan Hakim from London, UK, and Dr. Clair Francomano from Indianapolis, US.

The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. This can be in the form of a specific question or a short case history brought to the live session. Questions or cases should not be submitted in advance.

Program Fees

This a free program for healthcare professionals. Please note that CME/CEU/CU credits are not available for these sessions.

How Do I Register?

Although the sessions are timetabled for participants based in North America & Europe, any EDS ECHO professional participant from any region can attend. Registration is open throughout the year.

EDS ECHO Drop-in Sessions Australasia

About EDS ECHO Drop-in Sessions Australasia

The EDS ECHO Drop-in Sessions Australasia program is a monthly drop-in session for participants (past or present) who have attended any of our healthcare professionals’ EDS ECHO programs. Each session is 1hr in length and uses the Zoom platform.

Each session will be facilitated by Dr. Fraser Burling, from Auckland, New Zealand, and at least one other guest Clinician from our international group of facilitators and speakers.

The aim of the sessions is to allow colleagues to bring current clinical concerns about their patients to the group for advice. This can be in the form of a specific question or a short case history brought to the live session. Questions or cases should not be submitted in advance.

Program Fees

This a free program for healthcare professionals. Please note that CME/CEU/CU credits are not available for these sessions.

How Do I Register?

Although the sessions are timetabled for participants based in the Australasia region, any EDS ECHO professional participant from any region can attend. Registration is open throughout the year.

EDS ECHO ALLIED HEALTH PROFESSIONALS

The EDS ECHO Allied Health Professionals program is a virtual program for Allied Health Professionals from all over the world, run from three hubs in North America, UK and Europe and Australia. 

This program is suitable for Physical Therapists, Podiatrists, Clinical Psychologists, Occupational Therapists, Speech and Language Therapists, Dieticians, and Nutritionists.

The Allied Health Professional (AHP) programs are divided into thematic modules. Each region delivers different combinations of these modules across the year. Participants can choose to join as many of the modules as they wish.

AHP’s are encouraged to also join the Clinicians’ programs, including the Drop-in sessions, and Pediatrics programs, and may also be interested in the IMM Course.

Click the banners below for more information on each program.

About EDS ECHO Allied Health Professionals North America

The EDS ECHO Allied Health Professionals North America program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

The program is divided into thematic modules delivered across the year. Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Introduction to EDS and HSD if they are new to EDS and HSD. 

Each module is composed of 3 to 4 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by is led by Dr. Leslie Russek and Dr. Patricia Stott from the USA.

Program Fees

Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, Introduction to EDS and HSD if they are new to EDS and HSD.

Each module costs $20 USD per participant to attend.

About EDS ECHO Allied Health Professionals UK/Europe

The EDS ECHO Allied Health Professionals UK/Europe program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

The program is divided into thematic modules delivered across the year. Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Foundation Course – Introduction to EDS and HSD’ if they are new to EDS and HSD. 

Each module is composed of 3 to 4 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Dr. Jane Simmonds from London, UK.

Program Fees

Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Foundation Course – Introduction to EDS and HSD if they are new to EDS and HSD.

Each module costs $20 USD per participant to attend.

About EDS ECHO Allied Health Professionals Australia

The EDS ECHO Allied Health Professionals Australia program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions. 

The program is divided into thematic modules delivered across the year. Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, ‘Introduction to EDS and HSD if they are new to EDS and HSD. 

Each module is composed of 5 sessions, each session consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length and is led by Nicole Frost, Jacqui Main and Pauline Slater from Australia.

Program Fees

Participants can choose which modules they wish to attend – although participants are encouraged to attend the module, Introduction to EDS and HSD if they are new to EDS and HSD.

Each module costs $25 USD per participant to attend.

 

EDS ECHO FUNDAMENTALS OF THE INTEGRAL MOVEMENT METHOD

The EDS ECHO Fundamentals of the Integral Movement Method (IMM) is a virtual course for healthcare professionals wishing to learn more about movement strategies that can be implemented in their own practice.

The IMM program runs from London, UK, and is led by Jeannie Di Bon. Click the banner below for more information.

About EDS ECHO Fundamentals of the Integral Movement Method

The EDS ECHO Fundamentals of the Integral Movement Method (IMM) is a virtual course facilitated and taught by Jeannie Di Bon. The course will encourage you to learn from others and share clinical experience and methods in Movement Therapy, increasing your confidence and ability to work safely and effectively with EDS and HSD clients.

The course is suitable for healthcare therapists worldwide, working in physical therapies and seeing clients with EDS or HSD, including, for example, physiotherapists, osteopaths, Pilates teachers, yoga instructors, and personal trainers.

The learning objectives of the course are:

  • To understand how a Movement Therapy method is effective.
  • To learn movement strategies that can be implemented in the participants’ own practice.
  • To gain confidence in assisting people with EDS and HSD with exercise.

Course Curriculum and Structure

The course is composed of nine sessions timetabled across a 12 or 15-week period. Each session is two hours in length and uses the Zoom platform.

The course covers the following topics:

  • The physical, emotional, and psychological aspects of these conditions
  • Understand why we do need a unique strategy for this population of patients and clients
  • Applying the Integral Movement Method in practice
  • The pain mechanisms of hypermobility and how to manage these
  • Essential breath and relaxation techniques
  • A safe way to build proprioception
  • A new approach to stability
  • Introducing balance safely
  • Integrated posture of body and mind
  • Case study analysis to build an integrated movement programme for our patients and clients

The format of most sessions will include didactic presentations and learning, break-out room learning exercises related to specific topics and discussions surrounding case studies.

Participants will be required to participate in short exercise classes to help with the practical learning of the IMM principles.  These will be mat based exercises.  You may also be asked to teach another participant to demonstrate your understanding of the principles during break out room sessions.

Course Assessment

To gain a certificate of completion, each participant must attend at least 7 out of the 9 live sessions. They must also submit a case plan describing an 8-week exercise program for one of their clients (the ‘IMM 8-Week Client Program’). The plan will be assessed by the course lead, Jeannie Di Bon. Successful participants will be entered into a directory of Movement practitioners.

A certificate of attendance from the Ehlers-Danlos Society will also be provided at the end of the course.

Periodic drop-in sessions with the course lead will be held following completion of the course.

Course Fees

The course costs $500 USD per participant, which includes 18 hours of teaching plus course materials, care plan assessment, 18 Category 1 Continuing Education (CE) credits, certificate of completion, and inclusion on a network directory of therapists upon successful completion of the course.

How Do I Register?

The next course (IMM3) commences in January 2023. The course structure, dates, times, and the registration form can be be viewed by clicking the link below.

EDS ECHO PEDIATRICS

EDS ECHO Pediatricsis a virtual program for Healthcare Professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.

The Pediatrics programs run from two regions internationally. Click the banners below for more information on each program.

EDS ECHO Pediatrics North America

About EDS ECHO Pediatrics North America

The EDS ECHO Pediatrics North America program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.

The program consist of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. 

The program is composed of nine sessions, each consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr in length and is led by Dr. Sarah Schwartz and Constance O’Connor from Toronto, Canada.

Program Fees

There is a nominal fee of $45 USD per participant for this program.

EDS ECHO Pediatrics Australia

About EDS ECHO Pediatrics Australia

The EDS ECHO Pediatrics Australia program is a virtual program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for children and younger people with EDS, HSD, and associated symptoms and conditions.

The programs consist of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. 

The program is composed of eight sessions, each consisting of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 mins in length and is led by Dr. Louise Tofts from Sydney, Australia.

Program Fees

There is a nominal fee for participants to attend this program.

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