EDS Helpline

For general questions regarding the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)​, you may email the Helpline. Your email will be responded to as soon as possible.

Do not call our headquarters office as we will only redirect you to the Helpline email address.

The Ehlers-Danlos Society’s mission is to spread awareness and knowledge of types of EDS and HSD, educate medical professionals, and foster and fund research.  Contacting the Helpline implies an understanding that it is not a substitute for medical advice and/or care by a medical professional.

Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider.  If you believe you may have a medical emergency, call 911 or your country’s emergency number immediately.

By contacting The Ehlers-Danlos Society Helpline, you agree not to use this Helpline as medical advice to treat any medical condition in either yourself or others, including, but not limited to, patients that you are treating. Consult your own physician for any medical issues that you may be having. Minors should consult with a parent or legal guardian when considering treatment and providers. Under no circumstances shall the Ehlers-Danlos Society or any employees, associates, or affiliates of the Ehlers-Danlos Society be responsible for damages arising from use of this Helpline