We understand that many people are feeling uncertain and concerned about changes to healthcare, disability benefits, and social support programs in the United States as government policies and funding for these services are constantly evolving.
We have gathered resources from support organizations and services that help individuals with disabilities, chronic illnesses, and financial hardship navigate healthcare, benefits, housing, food assistance, and crisis support. For The Ehlers-Danlos Society mental health resources, please click here. If you need immediate support, please contact 988 suicide & crisis lifeline, for free confidential support for anyone in distress. Or use the crisis text line – immediate crisis support via text. Text “Reach” to 741741 (for further resources suggested by crisis text line click here.
This guide is intended to be a supportive resource in light of evolving policies, decisions, and staffing changes that may affect the availability of services and support. We encourage everyone to verify information directly with these organizations and to advocate for their rights by staying informed and reaching out to elected officials when necessary. If a resource here is outdated or no longer available, we would appreciate feedback ([email protected]) to help keep this guide as relevant as possible.
You are not alone. Support is available, and your health and well-being matter.
