Upcoming Ehlers-Danlos Society Events

Classical Ehlers-Danlos Syndrome (cEDS) Conference

September 19–20, 2020
Houston, Texas, USA

We are delighted to announce that we will be holding a conference focusing on classical Ehlers-Danlos syndrome (cEDS), at Baylor Medical Center in Houston, September 19–20, 2020.

The conference will involve expert speakers from all over the world, presenting the latest in research, clinical care, and management in cEDS.

Saturday, September 19, 2020, is health professionals day.

Sunday, September 20, 2020, is a day for individuals with cEDS and their families.

Details coming soon on how to register.  

The Ehlers-Danlos Society European Learning Conference

Health Professionals Day, November 7 • Community Day, November 8, 2020
Paris, France

Leading experts will present the latest management and scientific information about the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and associated symptoms and conditions.

November 7, 2020, is Health Professionals Day. Sessions will be presented in English, and translated into Spanish, French, German, Dutch, and Italian.⁠

November 8, 2020, is Community Day. This conference is for those who have EDS and HSD, and their families.⁠ Sessions will be presented in English, and translated into Spanish, French, German, Dutch, and Italian.⁠

Register and learn more here. 

Register now for the Arizona conference

The Ehlers-Danlos Society Global Learning Conference

August 5-7, 2021
Scottsdale, Arizona

Join us for our 2021 Global Learning Conference in Scottsdale, Arizona, USA. Leading experts will present the latest research, management, and scientific information in the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.

August 5-7 are Community Days: our conference for individuals living with EDS and HSD, and their families, including a track for Junior Zebras, ages 6–17.

August 6 is Health Professionals Day, a conference day running concurrently, for Health Professionals only.

Registration and learn more on the conference webpage.

Vascular Ehlers-Danlos Syndrome (VEDS) Summer Camp

July 30–August 1, 2021

Join us for our first vascular Ehlers-Danlos syndrome (vEDS) family weekend, partnering with Camp Joy in Cincinnati, Ohio, USA!⁠

We hope to see the biggest gathering of the vEDS community in the world, with educational presentations from world-leading vEDS specialists, and we will have a packed program of safe and fun activities for all ages and capabilities.⁠

The Ehlers-Danlos Society has secured a grant to fund those in the community with a “pay what you can afford” program.⁠ Register and learn more here. 

Issues with My Tissues Screenings and Q&A

Location and Dates – Various

Join Lara Bloom, President and CEO of The Ehlers-Danlos Society, on a special screening tour of “Issues With My Tissues”. These events are free and open to the public.

“Issues with my Tissues” follows Lara’s journey as she trains to become the first known person with EDS to walk the London Marathon in 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life. This moving, informative documentary features interviews with medical professionals, families with EDS, and individuals who have suffered from misdiagnosis.

Lara will answer questions about how she manages her day to day symptoms, how things have changed since the documentary, and the work of The Ehlers-Danlos Society.  Lara will give her personal tips and tricks on how to have as many good days as you can whilst living with EDS, HSD, and a myriad of related symptoms and associated conditions.

Click here for more information

For questions about conferences, please get in touch with our Events Director, Stacey Simmonds, by clicking here. Interested in becoming a sponsor? Please get in touch with Carissa Hocevar, Development Director.