Upcoming Ehlers-Danlos Society Events

International Symposium on the Ehlers-Danlos Syndromes

It is with great pleasure that we invite you to participate in the International Symposium on the Ehlers-Danlos Syndromes from September 26–29, 2018 in beautiful Ghent, Belgium.

The 2018 International Symposium on the EDS will bring together again clinicians and scientists working in the field of the Ehlers-Danlos syndromes. As a general theme for this meeting, we chose: “Interaction and signaling: recurrent themes in the molecular mechanisms of EDS.” The focus of the meeting will be on molecular, pathogenic, clinical, and management aspects of all types of Ehlers-Danlos syndromes.

We strongly encourage clinicians and researchers with an interest in the Ehlers-Danlos syndromes to attend this meeting. We’re expecting between 200 and 250 delegates from all around the world to attend.

For more information and a link to registration, please visit the symposium site.

If you’re interested in becoming a symposium sponsor, please download our Sponsorship Prospectus and Commitment Form, and get in touch our development director, Carissa L. Hocevar, through our inquiry form.

Becoming Zebra Strong: The Ehlers-Danlos Society Tour USA 2018

Join Lara Bloom, International Executive Director of The Ehlers-Danlos Society, on a special screening tour of “Issues With My Tissues” hosted by our US Affiliates from Providence, Rhode Island to Los Angeles, California. All events are free and open to the public.

“Issues with my Tissues” follows Lara’s journey as she trains to become the first person with EDS to walk the London Marathon in 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life. This moving, informative documentary features interviews with medical professionals, families with EDS, and individuals who have suffered from misdiagnosis.

Lara will answer questions and discuss how to become “zebra strong” in the face of EDS, HSD, and a myriad of related symptoms and associated conditions.

Please RSVP for these events here.


The Ehlers-Danlos Society Learning Conference Australia

After years of demand and need The Ehlers-Danlos Society is very excited to bring together in Australia leading world experts to discuss the Ehlers-Danlos syndromes and related disorders, including the recently-described hypermobility spectrum disorders. Lead by Dr. Jane Simmonds, in December we will be holding lectures and workshops for health professionals and lectures for patients over two days in Sydney and two days in Perth. This is our first Australian conference and we look forward to meeting experts and those affected by these conditions from across the world. Please tell your fellow zebras and medical professionals to hold the dates and we will announce more information on registration, venue details, and agenda in 2018. We are proud to be fulfilling our mission of reaching zebras from all over world to ensure that, one day, geography will not determine your quality of life. 

Please visit the conference pages here for more information

To register for Sydney (7–8 December 2018), please click here.

To register for Perth (10–11 December 2018), please click here.

If you’re interested in becoming a conference sponsor, please take a look at our sponsorship prospectus and our commitment form, and get in touch with our development director, Carissa L. Hocevar, through our inquiry form.

Check back here for more upcoming conferences.