Upcoming Ehlers-Danlos Society Events

Comprehensive Management of Ehlers-Danlos Syndromes

Saturday, November 17, 2018 • 9:00 – 11:00 AM Eastern

 
Dr. Clair Francomano (Director of The Ehlers-Danlos Society Center for Clinical Care and Research at the Harvey Institute of Human Genetics, Greater Baltimore Medical Center) will discuss all aspects of managing Ehlers-Danlos syndromes, including pain control and comorbidities such as dysautonomia and mast cell activation syndrome. This will be a live broadcast of a presentation hosted by the Greater Baltimore Medical Center.

To see this event live, please visit Go-To-Webinar Registration. After signing up, you will receive an email with instructions on how to access the webinar. Please be aware this is a live-stream only; questions will not be taken from our online viewers. Presentations are recorded and (barring technical difficulties) become available on the previous webinars page as well as our YouTube channel (http://bit.ly/EDSocietyYouTube).

 

Becoming Zebra Strong: The Ehlers-Danlos Society Tour USA 2018

Join Lara Bloom, International Executive Director of The Ehlers-Danlos Society, on a special screening tour of “Issues With My Tissues” hosted by our US Affiliates from Providence, Rhode Island to Los Angeles, California. All events are free and open to the public.

“Issues with my Tissues” follows Lara’s journey as she trains to become the first person with EDS to walk the London Marathon in 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life. This moving, informative documentary features interviews with medical professionals, families with EDS, and individuals who have suffered from misdiagnosis.

Lara will answer questions and discuss how to become “zebra strong” in the face of EDS, HSD, and a myriad of related symptoms and associated conditions.

Please RSVP for these events here.

The Ehlers-Danlos Society Learning Conference Australia

After years of demand and need The Ehlers-Danlos Society is very excited to bring together in Australia leading world experts to discuss the Ehlers-Danlos syndromes and related disorders, including the recently-described hypermobility spectrum disorders. Lead by Dr. Jane Simmonds, in December we will be holding lectures and workshops for health professionals and lectures for patients over two days in Sydney and two days in Perth. This is our first Australian conference and we look forward to meeting experts and those affected by these conditions from across the world. We are proud to be fulfilling our mission of reaching zebras from all over world to ensure that, one day, geography will not determine your quality of life. 

Please visit the conference pages here for more information

To register for Sydney (7–8 December 2018), please click here. Space is limited.

To register for Perth (10–11 December 2018), please click here.

If you’re interested in becoming a conference sponsor, please take a look at our sponsorship prospectus and our commitment form, and get in touch with our development director, Carissa L. Hocevar, through our inquiry form.

Check back here for more upcoming conferences.