June 2026
Listening Labs
Share your experience. Help shape the future of care.
We are inviting people with an interest in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) to take part in a series of Listening Labs: structured, online sessions designed to hear directly from those navigating care today.
These sessions are part of the development of the new Model of Care for EDS and HSD. This work focuses on how care should function in real healthcare systems, including earlier recognition, coordinated referrals, ongoing support, and better-connected care over time.
The Listening Labs are a core part of ensuring this new Model of Care is informed by lived experience alongside clinical expertise and research evidence.
July 2026
24th July 2026 @ 9.00am – 26th July 2026 5.00pm CST (Central Time, US and Canada)
2026 Global Learning Conference
The Ehlers-Danlos Society invites you to join us for the 2026 Global Learning Conference – a hybrid event designed for individuals and families impacted by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), as well as healthcare professionals and caregivers.
24th July 2026 @ 9.00am – 26th July 2026 5.00pm CST
2026 Global Learning Conference
The Ehlers-Danlos Society invites you to join us for the 2026 Global Learning Conference – a hybrid event designed for individuals and families impacted by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), as well as healthcare professionals and caregivers.
September 2026
3rd September 2026 @ 9.00am – 4th September 2026 5.00pm CET (Central European Time)
Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes
The Ehlers-Danlos Society is delighted to host the Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes event on September 3–4, 2026. The event will be held in Ghent, Belgium, with an online attendance option. It is intended for healthcare professionals, researchers, scientists, patient representatives, and policy-makers alongside representatives from pharmaceutical, biotechnology, diagnostics, digital health, and related healthcare organisations
3rd September 2026 @ 9.00am – 4th September 2026 5.00pm CET (Central European Time)
Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes
The Ehlers-Danlos Society is delighted to host the Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes event on September 3–4, 2026. The event will be held in Ghent, Belgium, with an online attendance option. It is intended for healthcare professionals, researchers, scientists, patient representatives, and policy-makers alongside representatives from pharmaceutical, biotechnology, diagnostics, digital health, and related healthcare organisations
